Doesn’t trying to get better seem like it’s all too much at times? There are meds and supplements, activity levels, sleep, self-care, food, maybe meditation/mindfulness activities, naps, exercise to consider. Then you have your natural fluctuations to account for.
The Reids big idea; create an app to track just about everything in ME/CFS and FM
Sometimes it seems like you need a computer to figure out what’s working (or not). Luckily a husband (developer) and wife (person with fibromyalgia) team just developed an Android/Google app that will take much of the guesswork and work out of figuring out what’s affecting your health.
The FibroMapp App is eight apps in one
- Pain Tracker – Track pain severity, location of pain, type of pain
- Meds Tracker – Track meds and supplements, add alarms to remind you to take them!
- Sleep Tracker – Track your sleep and your sleep debt; you may be surprised at how much your sleep is affecting your pain and other symptoms
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Personalize Fibromapp to track just about anything
Other Symptoms Tracker – As we know, there are over 200 symptoms with this illness, track which ones are affecting you, when and why (all of which you can personalize)
- Activities Tracker – Track what activities have helped with pain (pacing, the right kinds of exercise) and what activities have exacerbated pain (not pacing, too much exercise!) and other symptoms
- Medical Aids Tracker – Track when you have to use your wheelchair, your wrist splints etc
- Flare-Up Button – Experiencing a flare? Mark your pain levels, write up any salient points – and go to bed knowing you’ve got a record you can refer to later
- Journal – Help you (and your doctor) get a better understanding of how your illness affects your daily life by using the Journaling app
- Produce Reports – The app collates your data allowing you to see the patterns that will help you to avoid what makes you worse and do what makes you feel better. They will give your doctor will get a much deeper understanding of what’s going on.
It’s just what the doctor ordered. Alyssa, the co-founder of FibroMapps, was able to reduce her intake of five medications and validate how effective Low Dose Naltrexone was in helping her sleep using these apps.
Produce reports using Fibromapp
You can track the effects of almost any activity using Fibromapp. Plug in foods you’re avoiding to see if removing them (or adding them back in) makes a difference. Determine how much of effect your latest med or supplement had. How about that late sleep time you had? You can track all of these and more with FibroMapp.
Need proof for a disability claim? Fibromapp lets you track your daily symptom for disability and insurance claims. The Daily Records section holds up to a year of daily symptom monitoring reports.
And it’s all for $3.99.
Fibromapp is a not-for-profit project designed to help people with chronic fatigue syndrome and fibromyalgia treat themselves smarter and feel healthier. The developers have been so kind as to brand an app for Health Rising which means that half of every purchase goes to Health Rising.
Get Health Rising’s FibroMapp App here
Don’t have a Smartphone? Check out Johannes Starke’s review of a $70 Smartphone you can run this app on.
Great! Will it be released in Apple’s AppStore as well? I would love to try this app on my iPhone.
Me too please for iPhone 🙂
Ive been really wanting an app like that. It’s GREAT! Ihave an android THANX
I’ve been dreaming/wishing for something like this!! But I need it in Apple/Mac not Google/Android too! I hope they can transfer and release it there too. I’d buy it today!
Windows Phone. I won’t trust Google to manage my personal information. Blackberry is like crossing the border now, one secirity hoop after another. Until the new I-phones came out, Apple wasn’t even on my value-for-money horizon, either. I’ll look at this when it’s ported to Windows Phone or in two years I reconsider the I-phone. Apps won’t make or break my decision, however, which phone I like to use.
iPhone/iPad Please!!!!!
Yet another IPhone/IPAD user 🙂
This is great!! Posting this on my twitter feed & facebook!!
Thanks Blair!
Hi, sounds like a great idea. I have two minor beefs.
1) I would appreciate some notice about what platform it runs on upfront at the beginning of the article so I know whether to keep reading or not. I read the whole thing and got all excited and then realized only by reading someone’s comment that it does not run on the iPhone. Johannes’s articles do the same thing – not mention the platform and just assume that the only smart phones out there are android phones. I really don’t appreciate that. It’s a waste of my time (And sensory energy) reading about something I can’t use and don’t plan to switch to. I guess I am more sensitive to this than some others because I’m a long time Mac user and I’m used to people just assuming that the only platform out there was Windows. That’s not so bad anymore. But the feeling of being invisible still hurts and the whole thing is frankly annoying and insensitive.
2) If it’s for and ME/CFS and FM, why is it called “fibro”app? That also leaves me feeling a bit left out. I would like to track all my symptoms and be able to see patterns, but pain is not one of my top issues – thankfully. I would hope the app is flexible enough to work around that. But with the name, perhaps not.
But I guess it’s all a moot point because I only have an iPhone.
It does sound like a great idea though and I do hope at some point it’s available for Apple devices.
Thanks for the idea about mentioning the platform early, Sue. I’ll try an incorporate that into the blogs in the future. Please let me know if I don’t. I think the app is very flexible and would work fine for anything in ME/CFS. (I unfortunately, don’t have a smartphone yet, but the developer stressed the flexibility of the app.)
It’s pretty obvious there are alot of IPhone/IPad users who could us an app like this.
🙁 So Excited! I had put together a crude spreadsheet a while back to track symptoms, so this App is a God-send……………..but then, quickly became very disappointed 🙁 🙁 🙁 I too need an iPhone/iPad App…. I am so happy Health Rising gets partial proceeds 🙂
Thanks Cort for letting us all know. I will for sure share with my group and my Awareness Event I run 365 days a year. I have compared this app to a few other ones and this one does seem very comprehensive. I think this app fulfills our day to day living needs and has a journal which I am highly in favor of and encourage all to do is keep a journal. In addition I did see another app that would be a nice add on for free that simply leads you to information about drugs and interactions at your fingertips and some information that we may not normally read about the various drugs. I think the 2 combined is all I or anyone will need.
I need to change phones or I would have purchased this now. Soon as I make my phone change this coming week I will for sure be using this myself and encouraging others to use it also. I like that it can also be used for ME/CFS as well.
Take care and thanks again.
Good luck with the app and thanks for getting the word out. Let us know it works for you.
Eva Nagy mentions some other tracking apps…. Would you please share a couple? Thank you!
p.s. I can use this on my tablet right Cort?
If you don’t have an IPAD you’ll be fine 🙂
Thanks Cort no I have an android tablet that I like much better then inputting onto a phone..so yes that is where I will give it a try. Can’t wait. Info has been shared on both group as well as Awareness.. I researched and compared about a dozen apps and none got the same reviews as this app and considering it has been out only a short time 4.5 is an excellent score. I can see much potential in using this application. Thanks again and have a good weekend. 🙂
Nice! I was thinking of something really similar to this over the past 2 months, perhaps something that could have been a project — mainly for what you already mentioned: to provide the patient with a tool that will allow the doctors to have a much more useful, convenient, and effective method for seeing one’s history of symptoms, the timing and severity of such symptoms, triggers, etc.
Kudos to the developer!
I have an iPad that I would want to run this on. Are there any Apple apps in the tubes?
Great! Can’t wait for the Apple version!
IPad, please?
Ha! It didn’t even occur to me that someone would write an app that didn’t run on Apple IOS until I read the comments. Thanks folks for pointing out that I shouldn’t waste my time trying to download an app I can’t use… I’m grateful to those who put the app together, sounds like it will be useful. Porting it to IOS will get you a lot more $$!
Hi, I only have my computer, no moderng ipad mobile phone etc. Can I use this app (I do know what that means:) ) on my computer please? Still catching up with the tech age. I have wanted something like his for a long time. I have a manual chart but it is very tedious and time consuming and I am not always abe to do it, so don’t have a true record.
Jazel
Well, you do mention, about six lines in, that its a Google/Android app., but I read with interest anyway Cort. Thanks, but I’ll also be waiting an Apple version….please!
I can’t wait until there is an iOS version, sounds very awesome!
There is an even better app for the iPhone and iPad which allows you to finger paint your pain on a detailed body map. The app then draws a graph which shows the course of your pain over time. I love it! It’s called CatchMyPain (btw there is an Android version too) and it’s free!
Thanks for tip, Daniel.
Thank you! Every since I have been ill, I have been wanting an app! I created my own system of tracking my symptoms, etc in an excel spreadsheet, and while it works, it is not the same as an app! Let us know when it is available for iPhone.
Does all the above mean I will be able to use it on my computer via Google? Brain fogged.
I would love the Iphone app please so I can use this , it sounds fantastic, I am trying to do all of this manually for Rhuemy at the minute, it would be so much easier to have it all on my iphone for all appointments.
Can I run this on my pc? I can’t read an iphone, too small for my eyesight.
Thanks, Tim
Still wondering if I can simply download this to my computer. Can I ????? I’m very brain fogged and in pain with Ross RiverVirus so virtually not comprehending much.
Sorry.Jazel
Sorry to take so long to get back to you Jazel. I’m afraid the app only works on smartphones and tablets. If you’re interested in getting a cheap smartphone check out one of Johannes Starkes smartphone blogs; he found a good, inexpensive one 🙂
Have been playing with this app and I really like it so far. It’s very intuitive and since I’m completely NOT a techie, I like how easy it’s been for me to figure out. I borrowed my son’s old android phone and downloaded it on to that so I don’t have to pay for a monthly phone contract and can just use it when I have wi-fi service. Since I’m usually at home, that’s not a problem.
The only issue I’ve found so far is that under medications there doesn’t seem to be a way to track things like medication patches that you might only use or change a couple times a week. Since you can’t enter a daily dose for them, it seems that it won’t let you record those meds. Also, it would be nice to be able to track things like acupuncture treatments or yoga classes which occur weekly or bi-weekly to see what kind of influence they might be having as well.
Thanks for the “heads up” on the app Cort. And thanks to those of you who wrote the program for it!
Hi ! I also use patches and I did enter a daily dose… To track them, instead of putting 1, I put 0.3 since I have to change them every 3 days. I also did that for my vitamin D pills since I take them once a week… I put 0.7 As far as classes are concerned, maybe after the aggrating factors tab a soothing factor tab could be added to the app ? Yoga, water therapy, meditation and self hypnosis could be in there…Good idea, Ruthie. 🙂
Thank you so, so much for this. This is the best 3.99 spent on an app, I swear. I had made a data entry form on wich I took notes but this works so much better ! I bought it with septicism thinking it wouldn’t be very good but that it wouldn’t be a lot of money spent to see but WOW ! Furthermore, when on a crash and in bed, turning on the big computer and sitting is just too much… The app being on my tablet, I fill up my charts lying down and my doctor just loves the reports she gets… Please thank the people who took time to make this. It makes a real change in my life.
My sick friends here are all french and use my old form. Is there any chance to have it translated soon ? Oh, I forgot, in the other symptoms tab, what does IBS stand for ?
Great news Nathalie! Thanks for sharing your experience 🙂
I have FB & CFS / SLE APL / Sjogrens / RA / Behcet disease / AF / CHF / Osteoporosis / can I download it directly on my iPhone or iPad & is it free?
It’s $3.99 and I’m afraid it’s just for Android phones – not the IPhone or IPAD
really interested in this app – my symptoms worsen in the last third of my menstrual cycle – is there any way this app can take account of that?
Absolutely, you can easily able to easily track your symptoms over time. If they go up during that last third of your menstrual cycle that should be obvious. Maybe a doctor could figure out something that would help?
@Cort
Could a topic be added in categories for apps?
Or consider a button In HR banner to download this app (for a fee)?
And an option to save basic forms from app ONLY: (for a fee)
as pdf writable forms from app to save on USB and use,
or to print and use? (for a fee).
Thank you for considering this.
( plse set it so that there is an option for people to donate over and above the fee, if they choose to).