Poll The Reverse Bucket List for ME/CFS: If You Were Well.....What Would You Do?

[Cort]

A big difference between ME/CFS and FM and depression is many people with ME/CFS/FM know exactly what they would do if they got well.

It's good to dream!

I know what I would do - given the free time and money - me and the dogs would backpack the Pacific Crest Trail top to bottom in the Sierra Nevada. What would you do?

 

[Cort]

They are so cute looking.
We could compare photo's on our spectacular trips

 

[Cort]

Another ex-athlete and a weight lifter at that...
Have you read Jamison's Story? Another weightlifter - his ME/CFS started in the middle of a lift! -
Carrying That Weight: A Weightlifter’s Chronic Fatigue Syndrome Story

So far everyone wants to get out and move...

 

[Cort]

I also need to make a stop in Scotland to find me a Highlander to travel with!

You go girl...

 

[Merry]

I dream of eating fruit. Blueberries, cantaloupe, really ripe peaches. Maybe I could happen upon some wild strawberries somewhere after all these years. That's would be my start with tasting long-forbidden food.

I dream of visiting Serpent Mound during the summer solstice to see how the serpent's eye lines up with the sun. Serpent Mound is a hundred miles away, not that far if I were well.

I would like to browse in a big library for at least an hour. I would like to be able to read for hours, to comprehend what I'm reading, and, later, to remember what I read.

Once again I could garden. I'd plant heirloom plants, flowers and vegetables. I would especially like to plant the pale yellow, lemon-scented iris that grew beside the old farmhouse where I grew up.

A decade ago I got this idea that my son and I could put together a book on quirky yard art. We could travel around, he could take the photos, and I could interview owners and write about them and their yards and about our adventures on the road. (Not too likely that my son would actually want to do this -- or find the time -- but I can dream. . . .)

 

[Cort]

@Cort. We need to rename this the reverese bucket list! what we do when we live? You can be my wingman on my hunt for a Highlander since I got no game.

It's now the Reverse Bucket List - I love it!
I'll be your wingman for sure. Heck, maybe I'll even be your Highlander

 

[Cort]

I dream of eating fruit. Blueberries, cantaloupe, really ripe peaches. Maybe I could happen upon some wild strawberries somewhere after all these years. That's would be my start with tasting long-forbidden food.

I dream of visiting Serpent Mound during the summer solstice to see how the serpent's eye lines up with the sun. Serpent Mound is a hundred miles away, not that far if I were well.

I would like to browse in a big library for at least an hour. I would like to be able to read for hours, to comprehend what I'm reading, and, later, to remember what I read.

Once again I could garden. I'd plant heirloom plants, flowers and vegetables. I would especially like to plant the pale yellow, lemon-scented iris that grew beside the old farmhouse where I grew up.

A decade ago I got this idea that my son and I could put together a book on quirky yard art. We could travel around, he could take the photos, and I could interview owners and write about them and their yards and about our adventures on the road. (Not too likely that my son would actually want to do this -- or find the time -- but I can dream. . . .)

Simple desires Merry. May you eat baskets of fruit in front of the library some day...

A fantastic heirloom garden and lots of fruit trees is definitely on my list.

 

[GracieJ]

Do I even remember??

A trip up and down the AlCan over several months, visiting every little hamlet and indulging in photography with just the right equipment.

A huge English garden.

A kitchen with double super sized appliances for all the catering I would do for parties with friends. Add in the ability to eat the food!

Oh, cannot forget the extended stay in Morocco.

 

[GracieJ]

I was at work and had to cut my post short. So I am back. In 2006, I optimistically wrote out a huge bucket list. Had forgotten it completely, life has been so intense coping. I reflected on that list for a while yesterday. There are several other things on these lists for all of us, I am sure.

The other one I will add here - I would play my piano again, lots of ragtime. I am unable to memorize music; maybe I could figure that one out finally.

 

[Merry]

@GracieJ, I would like to hire you to cook for me. Cooking has become such drudgery for me. You would be welcome, of course, to use the vegetables and fruits in my garden. And perhaps you'd be willing to cater a party for all of us? And play the piano at the party?

 

[GracieJ]

@That just makes me smile.

Would you read aloud while I cook? Do I even remember how to cook?? lol

Just imagine. It sounds like heaven, all these things.

 

[GracieJ]

@Merry Lost that last bit. Sorry.

 

[Merry]

@That just makes me smile.

Would you read aloud while I cook? Do I even remember how to cook?? lol

Just imagine. It sounds like heaven, all these things.

Do you mean read the recipes to you? I could do that. Would be fun to work together.

 

[GracieJ]

That would work, too.

I was thinking of one of the books from that huge library.

What book would you read first?

 

[Paw]

I would go back and relive my professional life (and assorted aspirations) with greater balance and less forced energy.

Oh wait, you didn't say we could go back in time?

Hiking, camping, and travel, yes, but even more: I would probably find a significant other to spend my days and nights with. Since my son moved off to college it has always felt deceptive on my part to offer intimacy to others, given that I spend so much of my time as a boat anchor.

 

[Cort]

@Cort you got a kilt?

I tend to go kiltless around the house actually...

 

[Folk]

I think if every patient with ME/CFS recovered the earth would move an inch outside its orbit.

 

[Merry]

That would work, too.

I was thinking of one of the books from that huge library.

What book would you read first?

Oh. I said I was going to the library. I forgot. I wanted to browse to find books I didn't know existed. If you want me to read to you while you cook, let me know what you'd like for me to look for in the library. PM me.

 

[Lois d'Annunzio]

I would love to ride a zip line in Costra Rice. Then explore the country on horseback. Do some scuba diving in the Grand Caymana. Take my husband to the Galapalos Islands. Maybe even cook dinner! With food that I grew in my garden. That's it for the first month.

 

[Cort]

I would go back and relive my professional life (and assorted aspirations) with greater balance and less forced energy.

Oh wait, you didn't say we could go back in time?

Hiking, camping, and travel, yes, but even more: I would probably find a significant other to spend my days and nights with. Since my son moved off to college it has always felt deceptive on my part to offer intimacy to others, given that I spend so much of my time as a boat anchor.

What was your professional life before, Paw?