Bob Miller can’t dance…he can’t run…he can’t even play baseball for ME/CFS – he’s not strong enough for that but he can fall, and May 12th, ME/CFS International Day, he’s going to fall a long way, very quickly, to raise money for ME/CFS research.
It’s been a busy couple of months for Bob. He presented at the FDA Stakeholder’s meeting (4 days recovery), went on a 2-week fast for Ampligen (several weeks recovery) and now he’s going to fall about $13,000 feet – no muscle exertion required, just sheer guts – to draw attention to and raise money for chronic fatigue syndrome research. Is he the Evel Knievel of ME/CFS advocacy or what?
A No ‘Crash’ Day
Bob’s going to bail out of an airplane (with a parachute) at about 13,000 feet from the Parachute Center in Lodi, Ca. So far as we know they haven’t lost anyone yet (although..hmmm… they don’t explicitly say so….)
People with ME/CFS will be doing alot of things come May 12th (I may catch a movie :)) but only one, I venture to say, will be skydiving for ME/CFS.
Why is Bob doing this? Because he knows that cutting-edge research is the answer to this disorder and somehow, at least in my mind cutting-edge research and extreme sports are natural partners; both are seeking out new frontiers and this is Bob’s first jump ever. I wish Bob a thrilling ride and a soft landing and Simmaron continued success in their breakthrough research.
All proceeds will go to Simmaron Research Foundation – just a long stones throw from the jump area. With Bob’s neuro-immune issues and their neuro-immune research focus, supporting Simmaron is a natural for Bob.
About 10:30 PST, 12:30 CST, 1:30 EST Bob will be stepping up to the door, looking out and then – whoosh out he will go – falling 13,000 feet for ME/CFS….Its a ‘no-crash’ day.
The Jump-N-4ME Event
” Jump -N- “4” M.E. | |
Location | Parachute Center 23597 N Highway 99 Acampo, CA 95220 (209) 369-1128 |
---|---|
Presenter | Robert Miller, Jumper |
Age Range | All Ages |
Ticket Phone | (209) 369-1128 |
Contact | Robert Miller |
Web link | https://www.facebook.com/ |
Notes | 21st ~ “May 12th International ME/cfs Awareness Day” EventCome Support ME/cfs Research and Watch Robert do a Parachute “JUMP 4 ME.” @ 10am.Support Robert’s Jump: Those donating $25 or more will receive… |
When | Sunday, May 12, 2013, 10am – 12pm PDT |
Donate to Simmaron Here
Anyone donating $25 or more will get a JUMP-N-4ME T-Shirt….
A Note from Bob.
To All,
May 12th, 2013 is “International ME/CFS Awareness Day”. A day for patients to show Unity. To Raise Awareness for ME/CFS. I will be ” Jump -N- “4” M.E. in Lodi, CA. Which is 2 hours from Reno to Jump from an airplane (with a Parachute) to Raise Awareness for ME/CFS. I would ask patients, loved ones and friends who are able to, to Donate to Simmaron Research in support of this Jump, any amount is supportive. For those Donating $25.00 or more, you will receive one of the JUMP-N-“4” M.E. T-Shirts.
I invite all to come and watch, patients from the Reno Tahoe area as well as those in the Lodi area. The Jump will take place this Sunday, May 12th, at about 10:00 am. Bring family and friends to kick off this Mothers Day. We will have other healthy individuals there to spread the word to about ME/CFS.
Parachute Center
23597 N Highway 99 Acampo, CA 95220
(209) 369-1128
BOB’s- Health issues must be getting worse.
First he tries to starve himself to death.
Now he is jumping out of an airplane.
GO BOB
San Diego #1
:)…What’s next?
I hate to say it, & I really hope that it doesn’t cause him problems, but sky diving actually DOES take a ton of energy & it absolutely wears out ones muscles….not to mention that the impact on the adrenal system is pretty extreme. I went sky diving several times back when I was still healthy & was, in fact, in good enough shape to also run marathons (so my muscles were definitely used to exertion), & I really felt it in every bit of my body after jumping. It’s not a passive thing, by any means. I love that he wants to do this, but like I said, I really hope he doesn’t wind up paying for it by crashing badly.
Hmm…so it’s not just falling. I recommend saline before and after – and that’s all I got I’m afraid. I hope it’s not too taxing…Good luck Bob!
definitely not just falling…..incredible, exhilarating, amazing, thrilling, but also very taxing….I’d actually honestly recommend running before I’d recommend sky diving for any of us – it’s really that physically demanding…..I do truly hope & pray that he is ok, though……wish I had something I could recommend that might help, but I have no idea – I guess anything that would support the adrenals & cardiovascular system
I also really hope that he has someone driving him
I didn’t even want to say anything, bc I think it’s awesome that he wants to do this, but I just couldn’t live with myself if I didn’t say something, so that if there’s any way that he can be forewarned & prepared to at least hopefully limit the impact, he can
wrote what I did above & then saw the response rt below mine…..whew….so glad to know that there will be medical assistance available, though I am still concerned
good luck….I truly do wish you the best
To ease any ones concern for my health, I will have medical assistance with me. I am blessed to have some very good friends. I appreciate kind thoughts and concern for others, it is what drives me.
Thank you All,
Bob Miller
I think that docters who do not believe in ME/CFS thinks that Bob is ”grazy” he is very sick but he can jump out of an airplane? It is not my opinion but they will think like that. Good luck Bob!
When I heard I thought that skydiving was one of the few ‘athletic’ things that Bob could do. Dr. Peterson apparently is in agreement with that. I wonder what kind of serious illnesses preclude skydiving; I imagine that people with all sorts of serious illnesses can skydive.
I understand the worries about downplaying the severity of ME/CFS but I think that doctors recognize that while many people with ME/CFS are very, very sick many others also work. I actually think the image of somebody with ME/CFS doing this for ME/CFS research is a good one; it’s a positive action, it shows initiative and I think that’s good overall.
I knew, Cort, you have done this already! I have not but had my college aged daughter call me right before she reached the airport to do so. I, for a moment, was worried (I have problems not worrying with this one!) but she called back and was laughing. Fine!! I am glad Bob has medical assistance with him, hopefully his doctor is strapped to him!! Wish I could see this in person! Only the patients understand, as I would do it if I could, and heck with the naysayers. Good luck to Bob! It is cold up there, thermals, Bob!! Blessings~~MC
I’m impressed with what you are doing, Bob. hope you raise lots, and even more hope you have a fabulous time.
God blesses you Bob.
How did it affect you after. I have me cfs and REALLY want to skydive but there is not really any info online other than you. I’ve been trying to convince my mom let alone myself that I’ll just need like a weeks rest after but I’m not sure. Your response is much appreciated
Bob just keeps getting Braver and Braver. We are all with you. Hope you are safe and recovery is not far behind.
Keeping you in my Prayers.
San Diego #1
What were the results of this?
How did he feel afterwards, and can others with CFS do it?
How much money was raised?
Hi Bob
I was very surprised that you jumped. I am thinking on doing the same think.
I suffer from fibromyalgia which includes CFS.
How did it effect your body?