If the virus situation in ME/CFS with its possibilities of aborted, endogenous or just plain hidden viruses wasn’t enough, now perhaps comes the strangest
Small herpesvirus study suggests tens of thousands of ME/CFS could be helped by valcyte
twist of all; ME/CFS patients infected with one herpesvirus that’s been integrated into the DNA of every cell in their body, and another herpesvirus as well!
The good new is that if this preliminary study is correct, 15-20,000 ME/CFS patients in the US may have an effective treatment waiting for them.
Check out the latest twist in the pathogen in
Thank you Cort – I can count on you to keep me updated. So glad I’ve subscribed to this through email. Often times the articles are too long for me to comprehend, but I have a great husband who plows through them for me and gives me the details (cognitive challenge due to ME/CFS)
However, I’m going back to this over and over until I’ve digested it or my head pops! LOL! This is the most hopeful report I have heard yet (personally) because I have an ill mother and ill sister. Neither have pursued or have the diagnosis of ME/CFS, but both have these neurological abnormalities and fatigue. This research may well be describing me.
Just wanted to say thank you for the consistently great info you bring us!
Thanks Melanie, I really appreciate. As someone with ME/CFS I’m glad I have the opportunity to dig into stuff like this….I feel like we are getting closer.
Hey, as Kristin Loomis said as we went over it – this is a tough one; it’s even hard for doctors to understand. The jist of it for me is that people with ME/CFS who have tested positive for HHV-6 via PCR probably have it integrated into their DNA AND – they may very well have another HHV-6 infection as well (This is preliminary; it’ll take more studies to determine that but the limited evidence thus far is pointing that way.)…Those people, again based on limited evidence, may very well benefit alot from Valcyte, a drug that is not used alot on ME/CFS because of its possible side effects…
This is probably a small subset of the ME/CFS population – perhaps 2% or so but that could translate into 15-20,000 people in the US.