The title of the online summit, “The Many Manifestations of Mast Cell Activation Syndrome (MCAS) Summit,” is an apt one. If the proponents of mast cell activation syndrome, or MCAS, are right, it can cause just about every symptom in the book. That, of course, appears to make it a natural fit for diseases that produce just about every symptom in the book like chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM).
The proponents of MCAS agree that it’s not easy to pin down, and that the best course oftentimes is to treat it and see what happens. Other than some hypothesis papers and a few studies, MCAS hasn’t gotten much play in ME/CFS and FM research circles, either, but IBS studies have pretty clearly implicated it in that disease.
ME/CFS experts like Dr. Chheda and Dr. Klimas have been incorporating mast cell treatments into their ME/CFS/FM practices – in Dr. Klimas’s case, for at least the last ten years.
Dr. Klimas, an immunologist, at one point called MCAS the most interesting immune disease going, and last year reported that mast cell activation plays a major role in the post-vaccination problems that some people with ME/CFS are experiencing. (She prescribed mast cell stabilizers for them). One of the world’s foremost mast cell experts, Dr. Theoharis Theoharides, recently became a member of her team at the Institute for Neuroimmune Medicine.
The Many Manifestations of Mast Cell Activation Syndrome (MCAS) Summit
The same cadre of speakers often shows up in these online health summits but not this time.
While we get some of the usual themes (how to improve your energy, how to heal from stress, brain retraining), this summit brings in a mostly new crowd that includes some of the main players in the MCAS treatment field such as Lawrence Afrin, MD Jill Carnahan MD, Neil Nathan MD, Mary Beth Ackerly MD, Theo Theoharides Ph.D.
The field’s increasingly broad reach can be seen in some of the topics addressed: endometriosis and MCAS, the brain and MCAS, MCAS and EDS and Lyme disease, dysautonomia and MCAS, and epigenetics and MCAS.
Thankfully, quite a few presentations focus on treatment approaches including “A functional medicine approach to MCAS” Protocols for treating MCAS”, “Treating MCAS in the Complex Patient”, “How to Identify and Manage MCAS”, “MCAS: Common Triggers and Treatment Order”, and “Optimizing Immune Balance”.
For those wanting to learn what MCAS is and how to tell if you have it, Lawence Afrin, MD, the founder of the field, gives a talk on “Mast Cell Activation Syndrome: Diagnosis, Genetics, and Hope”, there’s Lawrence Weinstocks’ “Gastrointestinal Presentations of Mast Cell Activation Syndrome”, and “How to Identify and Manage Histamine Intolerance”.
For those interested in how to test for mold or other toxins, there are: “An Expert’s Guide to Mold Remediation” and “Building Assessments for Environmental Illness”.
The presentations tend to be pretty weighty, with most lasting 50 minutes or so.
Attending the Online Summit
This is the first online MCAS Summit that I can remember and it’s a long one – 7 days (Aug 29th to Sept 4th), with 6 or 7 presentations almost hour-long presentations each day.
Registration
Registration is free and will get you some gifts and allow you to watch the presentations the day they are given. It will also give you early access to the following talks:
- “Gastrointestinal Presentations of Mast Cell Activation Syndrome”, “Pyroluria, Anxiety and the Connection with Lyme and MCAS”, “Functional Medicine Approach to MCAS”,
and the ebooks:
- “Mast Cell Activation: Frequently Asked Questions Guide”,
- “Low Histamine Diet Starter Kit Guide”,
- “Introduction to Guided Imagery & Hypnotherapy eBundle”.
Register here to watch the entire 7-day summit as it plays out day by day.
Ordering the Summit
Or you can order the Summit and download the entire 7 days and put up your feet and watch the 40-plus presentations at your leisure. Three options are available. Each has a 100%, no questions asked, 30-day money-back guarantee.
- order the entire Summit for $69 (early bird price) and download it
- order the entire Summit and get “Dr. Kelly McCann’s Course “MCAS: How Do You Regain Control?” as well
- order Dr. Kelly McCann’s Course “MCAS: How Do You Regain Control?” and don’t download the Summit.
Ordering any of these packages will also give you eBooks on the effects of histamine gut repair, preparing your body for detox, a guide to detox, how to do a low histamine diet, and low histamine recipes.
Order one of the packages here
Health Rising is an affiliate member of this Summit. Any orders will provide it with some funding.
Thank god this is getting some attention.
🙂
i hope this is closed-captioning
Registered and have looked twice for a schedule of presenters and times, but am missing it. Could you please direct me to it?
I can’t find it either. Did you get a schedule after you registered?
how must a verry severelly bedridden one get through this? with no help from gp or someone else, normally speaking dutsh. it feels hopelous…
Hi Konijn, I had a look at it https://mastcellactivation.byhealthmeans.com/?idev_id=869 : One the one hand, this is full information overload with around 47 presentations, on the other hand it seems this is also like a trade fair, with many of the presenters also being private service providers (for example medical service providers, a provider for a mold tox diet course, or a provider of environmental analytics), and by registering you “consent to receive offers and related promotional communications from the The Many Manifestations of Mast Cell Activation Summit, Kelly K. McCann and HealthMeans” [which I suppose could include information about upcoming summits organised by HealthMeans]. I can withdraw consent at any time.”
I guess it’s interesting for patients in the US to know about concrete tests/services they could order there.
So a possibility would be to click on the “what you’ll learn” button of each presentation, pick only 2 or three that are most interesting, and take them with just a little caution if the presenter is also a service provider.
Very slowly…for me I would focus on the treatment and protocol talks. The nice thing about MCAS is that there are some readily available treatments to try.
I have tried the supplements that are suggested to help but they all gave me such stomach and intestinal problems I had to stop ..none of them could I tolerate. Very disappointing as, as you mention, they are readily available.
Thanks, I reckon I probably have mast cell activation syndrome. I’ve heard of some of these people. I’ve signed up and will try and watch what I can manage.
I guess the question right now is – who doesn’t have it? I wish we had some good studies but diagnosis is still pretty tricky.
I wonder what happened to the thymoquinone study a french team collaborating with the open medicine foundation? Do you know Cort.
The best relief I’ve ever had from POTS , sympathetic activation and endurance, which are all related to MCAS for me was black seed oil
It was like a miracle. No orthastic intolerance etc. That combined with sugar..I was functionally almost cured for months . But I became concerned bout taking oils and sugar, and also the omega ratios in the oil.
Heard it could clog the arteries significantly therefore reluctantly stopped.
Thymoquinone, which is the active anti inflammatory is relatively occuring in smallish ratios in black seed oil. From what I understand, it can be isolated and is a huge anti inflammatory, anti degranulator.
Like I say, I only stopped because the oil was giving me vascular issues, otherwise id be guzzling the stuff.
Any ideas
Thanks for providing this opportunity to learn more.
Thanks. Really quite a hearty summit!
My son – very severely ill with ME/CFS, had genetic testing done in the U.S. almost 2 years ago. All normal except for Mast Cell Activation mutation. This info was however was ignored by the doctors I reached out to here in Canada. A big relief to see education becoming available! Not to mention how grateful for some OTC tips made available to help alleviate the all encompassing suffering (given that no help available from even the so called “top notch” doctors here).
God bless the researchers. And Health Rising.
Well said
As a patient I appreciated watching the summit… I have leaned so much. I ended up paying to get access to videos to watch in my own time. I appreciate knowledge of supplements I learned about…as I am very hyper sensitive to excipients. I believe I am MCAS and responding well to some of the protocol talked about. My naturopath will be reading my transcripts and joking future summits.
A great positive event for me .I have ME, CFS , MCS and iBS etc etc etc and certain I am MCAS.
Good to hear Bente. Good luck with your new treatments 🙂