“I didn’t hold back, I tried just about everything from the Keto diet to IV Ketamine, an hallucinogenic that physically repairs the brain. I truly believe that I have found the perfect combination of therapies to help relieve the majority of the fatigue issues that you may be feeling whether they are caused by COVID, EBV, LYME or any other triggers.”
The third in a series of reports on how people recover or are recovering from chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), and/or long COVID accentuates the very different ways people can recover from these diseases. None of the first three recovery stories have anything, that I can see, in common with each other.
- Up from the Ashes: James’s Severe ME/CFS Recovery/Recovering Story – CIRS-based treatment approach
- A Rapamycin Resurgence: An MD Moves the Needle on his ME/CFS – Rapamycin
The almost 70 recovery stories found on Health Rising’s Recovery/Recovering pages run the gamut from mind/body to antiviral, to alternative health, to dietary approaches, that have worked.
After Jason’s 16-year journey with ME/CFS, he reported that he now leads a “near-normal” life.
Jason’s story is particularly interesting because he found many of his answers in the farther reaches of the alternative health fields. He came down with the flu/EBV (or, he believes, XMRV) in the early 2000s and was sick for 3 weeks with fever, cough, etc.
In the beginning, he was fatigued most of the time but had some good days – which he invariably ruined by trying to exercise – which caused him to crash badly the next day. His health slowly but steadily declined with the crashes lasting longer and longer until any type of exercise left him bedbound for several days.
Over time he learned how to carefully manage his energy levels, which meant no exercise at all and very short walks. Frustrated by the fact that he couldn’t exercise or even play with his kids for any length of time, he became depressed.
After going down the antidepressant/just exercise path, his primary care doctors recommended he seek ME/CFS specialists, who opened his eyes to a new world. Jason fearlessly tried everything from mind/body work (Lightning Process, meditation) to nebulized hydrogen peroxide, to a cervical collar, that could help him and in doing, so he’s tried many things that, for the lack of money or knowledge or even fear, many of us have not tried. Some of them have worked out really well for him. While time-consuming and costly, his approach has allowed him to live a relatively normal life.
As he experimented on himself, he recorded his results for each of the many types of therapy he tried. Eventually, he took all the information he’d gathered together on many different treatment options and wrote a book to help others navigate the myriad of therapies out there.
I found the book well-written, quite thought-provoking, and at times, hilarious (his sense of humor is still abundantly intact). Jason frequently cites studies (but does not provide citations) but thankfully, provides abundant explanations.
First, a brief look at things that helped Jason with his recovery, and then a deeper dive into his book:
- The Difference Makers – nebulized hydrogen peroxide and nebulized glutathione.
- Significant Helpers – Alpha stim therapy, PEMF therapy combined with red light therapy, exercise with oxygen therapy (EWOT), high-dose vitamin D, ketamine IVs for depression, low dose naltrexone, daily meditation, sermorelin for sleep, cervical collar, intermittent fasting.
Jason’s Therapeutic Approach
Jason’s One-Two Punch for His ME/CFS
Nebulized Hydrogen Peroxide
Things take a turn to the further reaches of the alternative health field with Jason’s go-to treatment: nebulized hydrogen peroxide benefitted him more than any other. I don’t know if nebulized hydrogen peroxide could have stopped the coronavirus in its tracks, as he suggests. His report, though, that within a week of nebulizing 2-3% food grade hydrogen peroxide he was feeling 80% better, was striking.
I don’t know anything about nebulizing hydrogen peroxide. Jason states that the therapy purports to release large amounts of oxygen in the blood and is very effective at killing pathogens. He also states that the therapy is regularly used in Europe. For me, I tried intravenous hydrogen peroxide when nothing else was working but it – like everything else – failed to do anything. Jason, however, takes the nebulized approach, which I haven’t tried. He provides instructions on how to do it and notes that food-grade hydrogen peroxide must be used in its 3% form (not its 12%, 30%, or 35% forms). (He uses saline solution to dilute it to 2%.) It should also never be drunk – only inhaled or used in an IV. (A future blog will check out the pro’s and con’s of taking nebulized hydrogen peroxide.)
Nebulized Liposomal Glutathione
Jason stated that his use of nebulized 3 ml hydrogen peroxide in the morning and nebulized 3 ml liposomal glutathione (s-acetyl-glutathione) in the evening provided “the remedy for fatigue, that I have been seeking for all these years”.
Depression
As his functionality declined further and further, Jason, not surprisingly, became depressed. The first treatment chapter in the book exhorts the reader if they are depressed, to find a way to treat it. That includes taking the standard antidepressants, as well as trying supplements such as St. John’s wort (but not with an antidepressant), SAM-e, 5-HTP, GABA, magnesium, folic acid, vitamin B-6 and anti-inflammatory supplements (omega-3, curcumin) and diets, seeing a therapist, immersing yourself in humorous movies, TV shows, and books, trying EMDR therapy, and forgiving others.
Jason – as he often does – ventures onto the skinnier branches of the alternative health care movement, and health care in general, noting that psychedelic drugs such as LSD, esketamine (Spravato), and psilocybin have, in the few trials published thus far, been found to be helpful. One example of how serious psychedelic research is getting came with a 200-plus patient treatment-resistant depression psilocybin study that was done solely to determine which dose (1 mg, 10 mg, 25 mg) was most effective (25 mg).
Psilocybin, of course, is now being trialed in fibromyalgia. A Health Rising poll reported that about 75% of people would be willing to enroll in a microdosing trial or use the drug if they could get it and knew how to use it safely. Sixty percent of the people who tried microdosing reported it was “very helpful”.
Jason found ketamine – an old-time anesthetic being repurposed to treat depression and chronic pain – “to be an incredible medication to help reset the brain”. He had a psychedelic-like experience that left him with a “sense of calm, exhilaration and euphoria”. The next morning, he felt “absolutely wonderful, with more energy and a lightness of mood” that he hadn’t felt in many months. Five out of the six sessions were “wonderful experiences” which left him with a lighter mood and much more energy. He called ketamine therapy “a real game changer”. Recently he reported that he continues to receive similar benefits.
Ketamine is one of the most intriguing drugs around, and anecdotal reports have been promising. Two ketamine trials – including a quite large Belgium study – are underway in fibromyalgia.
Sleep and Autonomic Nervous System Problems
Jason found the brief periods of wearing a cervical collar – particularly while in a crash state – to be helpful.
Jason’s chapter on sleep is quite comprehensive and mentioned some things (Sermorelin, the COVE device, the DreamOn device, the Tap Tap method) that I had not heard of). Ditto with the autonomic nervous system chapter, where he links sympathetic nervous system problems to chronic inflammation and possibly cervicocranial instability. He reported that brief periods (10 minutes 3x’s a day) of wearing a $19 inflatable cervical collar from Amazon (many options are available) produced an “extraordinary effect” in relieving his fatigue – particularly on crash days. (He noted that side effects can occur and recommended checking with your chiropractor.)
That prompted him to contact a spine specialist, who confirmed that his vagus nerve was being pinched by his slightly misaligned vertebrae at the top of his spinal column. Physical manipulations by his chiropractic – shown by changes on his x-rays – have been able to relieve the pressure.
Calling the vagus nerve “an extremely important puzzle piece in beating chronic fatigue”, Jason also provides a protocol for doing slow, deep breathing that sensitizes the nerves that activate the parasympathetic nervous system (PNS) and helps to calm the sympathetic nervous system down. He also recommends single nostril breathing
His absolute must, though, is an hour of meditation a day to calm the sympathetic nervous system down. Do not skip this – he adjures us – at any cost. His technique involves counting – up to 1,000 breaths at a time. At 6-700 breaths, he tends to enter a “theta-wave” brain state which disappears brain fog and leaves him relaxed and with a clear mind. He also recommends trying the MUSE device, particularly if meditation isn’t working. Other ideas include yoga or tai chi if you’re strong enough, singing or humming, eating fermented foods, aromatherapy, cold therapy, binaural beats, vagus nerve stimulation, the Alpha-Stim device, getting out in the sun, and humor.
Oxygen Therapy: HBOT and EWOT
Jason’s book, “Chronic Fatigue Gone!: A Recovery Plan for Covid Long Haul, ME/CFS, Lyme & Fibromyalgia (And for Anyone Who Wants More Energy)”, can be purchased on Amazon.
With regard to exercise, Jason’s experience is that exercise is possible – if you combine it with oxygen therapy. EWOT (Exercise With Oxygen Therapy) involves inhaling oxygen produced from an oxygen generation unit when you exercise. He reports that EWOT improves circulation, restores blood flows, and increases ATP generation, and prefers it to HBOT given that it’s cheaper (but still expensive – $3,000), can be used at home as you exercise, and will probably provide a bigger energy boost.
He uses it every day for 15 minutes and gets a rush of energy from it. He said he “couldn’t recommend this therapy highly enough”. (See https://www.ewot.com/, https://liveo2.com/, https://www.hypermaxoxygen.com/, and https://www.promolife.com/ for more.)
A possible substitute for EWOT is doing the Wim Hoff breathing technique, which Jason says can be particularly helpful if you do it just before exercise. (I found this to be true when I tried it. I stopped it when I was getting neck pain, but it allowed me to briefly exercise (pushups) without generating any PEM).
Others
High Dose Vitamin D
Jason called taking hi-dose vitamin D one of the keys to his recovery, and cited a Harvard-trained neurologist whose research showed a link between a lack of deep sleep and low D3 levels. The neurologist recommended 20,000 IU of vitamin D a day for 6 weeks and then a reduction to 10,000 IU. Jason discusses what he believes are unnecessary fears about vitamin D toxicity but does recommend that everyone have their calcium levels checked if they embark on high-dose vitamin D regimen.
Lightning Process (LP) Provides “First Step”
Jason tried the Lightning Process in 2019 when his fatigue was bad and his mood was worse, and it helped. While he still had a long way to go, he regarded it as ‘the very first step” in his recovery. In one of the last chapters, he emphasizes how helpful it is to monitor your internal dialogue and be positive.
Jason’s PEM Buster
Health Rising recently featured a blog on PEM busters, and Jason, not surprisingly, has developed his own unique one for when he had to do something on a low-energy day. He explains the whys of each step in the book.
- Upon awakening, drink a cup of coffee and take one modafinil. (He finds that modafinil or Provigil provides excellent cognitive function and has fewer side effects than Adderall but can produce a crash. He does wonder if microdosing could work. It should be taken as early in the day as possible.)
- 5 minutes of deep, slow breathing or Wim Hoff breathing.
- 5 g d-ribose powder plus 500 mg acetyl-L-carnitine to 40 oz of water with electrolyte powder.
- 10 minutes of nebulizing 2% food grade hydrogen peroxide.
- Rinse out the nebulizer and nebulize 2 ml of reduced glutathione.
- Take a cold plunge in a pool, bathtub, or cold shower. Do more deep breathing.
- Wear an ice cap for as long as you can stand it.
- Eat nothing the day before have a light carb, no sugar meal before you do whatever you have to do.
Jason also has chapters on hyperbaric oxygen therapy (HBOT), CBD, diet (intermittent fasting “is a must and an important part of your recovery”), and positive thinking, and reports briefly on mind/body therapies or tools such as Mickel therapy, Mymee.com, and the Curable app. Other subjects briefly covered include fecal transplants, ozone therapy, halotherapy, biocharger therapy, biomagnetic therapy, chelation therapy, Gerson therapy, laser therapy, and others.
Jason’s Supplement Regimen
Lastly, Jason provides a list of supplements that he takes and the justifications for each. They include:
Electrolyte powder, D Ribose, acetyl-l-carnitine and propionyl-L-carnitine, magnesium, CoQ10, baking soda (starting with 1/8th teaspoon in a glass of water a few times a week), omega-3 fish oil, multivitamin, phosphatidylserine, betaine HCL, trans-resveratrol, NMN and NADH, mitopure, super B complex.
- Check out Jason’s story and his list of helpful resources on Health Rising’s Recovery/Recovering story pages.
- Check out more recovery stories here.
Conclusion
“Most of all, don’t give up, don’t give up, don’t give up, and when you feel like giving up, don’t give up.” Jason Boyce
Jason’s book was clearly a labor of love that he poured a great deal of energy into. I found it a fascinating read. If you’re into alternative therapies, in particular, it’s well worth a shot.
Why would you help someone who probably didn’t have ME, flog a book?
Nothing new here Cort. Really disappointed you’d fall for this.
Maybe you overestimate me, Flip (lol) but seriously there was lots of new stuff for me but more to the point, why do you think he didn’t have ME/CFS? Because of how he recovered? Or that he recovered?
Once I heard that he couldn’t exercise without falling apart and spent days in bed afterwards – that was like it for me. Of course he was also diagnosed with it by doctors, and used techniques proposed for ME/CFS by his alternative medicine doctor but this story seemed to fit the big picture for me.
We have some recovery stories coming up that are so simple that I’m sure that some people are going to think they didn’t have what I have! Any maybe they don’t – probably they don’t – but they fit the broad picture of ME/CFS: they all had exercise intolerance, most dropped out of the workforce, and looked and looked for answers.
Avindra Nath’s report from the NIH Intramural study is going to be very interesting as he is apparently finding quite a few people with other usually hard to diagnose and often rare illnesses who appeared to have ME/CFS. I don’t know that there’s anything we can do about that, though, as it took really extensive testing as well as a panel of ME/CFS doctors to ferret them out.
Cort – I really appreciate your excellent articles – A1 stuff. As I have learned, feeding the mind with new information keeps us going!
I don’t over estimate you at all, you’ve worked extremely hard and brought tons of great info over many years to the masses, and some I have managed to remember so that is how I can tell you there is nothing new here, apart from it being risky!
I have much respect for you and the time you dedicate, but I don’t understand your penchant for helping grifters sell books and promote their “summits”.
It isn’t about recovery, its about how he has promoted himself and how he is desperate to sell his book.
“Why didn’t he have CFS?” – Because genuine people who were sick would not sell books and heavily promote themselves.
They would make a facebook page or cheap website, and share the information for free, or share it with you – like James.
Anyone who is sick knows that Cort.
I suspect the crux of the matter is that you object to these types of treatments. My personal experience of the people that do these Summits is that they believe that they can help and often have benefited from them, themselves. .
But Flip this book costs $14.99 and you can get it for free on Kindle unlimited. It’s got lots of information and undoubtedly took a lot of work to put together. Nobody is making a lot of money and nobody is out much money if it doesn’t work out.
I’m interested in his use of liposomal glutathione..I am nebulising 400mgs of glutathione powder on 5 mls of saline and I find it helps clear my mind and gives me a lift in energy and spirits..I have mercury poisoning..
If I had more details of how he’s nebulising liposomal glutathione I would definitely try it, because I feel it would help me a lot
I think his protocol is very interesting and I find it inspiring..so thank you for posting it !I’m also a big fan of HBOT.
I think for anyone who has read anything about PEM would question how can someone do so much self testing, with out causing harm?
To promote LP when we know LP harms people and PACE trial proved that, along with Professor Crawley on children is irresponsible? There is no balance of what is known.
Reset the brain is unproven so that term should not be used as if it had and you just have one persons journey. How do you test that the brain has been reset? Evidence is needed.
He still has not recovered and yet he knows what worked – how? How does he know which part did what and why.
How can one person do this in this type of time frame and how many people have tried all of this and had some success and which ones died trying?
We as a community deserve better? Balance understanding ask questions make sure that these articles are as they would be for cancer or AIDS ? How would it be to say reset your mind gram and do a few other things, just give it a go ?
The sad thing is all those that have fought so long to have proper research designed and accountability in place are going to have to fight psychological therapies all over again. This leaves us open to having to prove proper research is needed that is why we as a community get angry. For decades we have had to prove we are worthy, this proves we are not. Throw everything at it and no harm will come to you approach is unforgivable.
Can’t wait for the next recovery to shut us up and out of research why would they research when you can do all this yourself?
You say the American study is going to show us what? Are you preparing the ground for us to be told a few tweaks of resetting the brain and we will be OK? Don’t ask how it worked?
I don’t mind people recovering, it is fine but a few peoples individual eclectic journeys are what we have heard 1000 times before and all end the same – letting the Millions down and for the PACE trial authors and Professor Crawley to start up LP CBT on kids again. How many harmed ? Who counts the cost of that? NO ONE perhaps that is what we need for balance?
There is no consistency in these recovery stories just luck?
Jason’s results are not based on studies. They’re his own personal results – so when he says that LP or anything else helped I would just take him at his word – and take them with the appropriate grain of salt; i.e. Jason is an n of 1 and we know how heterogeneous these diseases are.
I don’t understand the PEM and testing link. I’ve tried lot of things – not as many as Jason – but lots of other things. They either work a little or don’t do anything for me.
There are ample stories of people who have been helped by “brain reset” techniques, quite a few doctors are including them in their practices, and some small but positive studies have been done. I don’t we can really question whether some people are helped in some way by them – probably, in my opinion, because they help ramp down a hyperactive stress response that is sparking inflammation and other problems. Check out the series on Donna Jackson Nakazawa – she has a autoimmune disease and using them increased her functionality, quality of life and immune tests (!).
He knows what works like anyone would – he had a strong response to a treatment.
CORT, Do you have an estimated time of when the Nath NIH report will be out?
Cort, I love this response. As you know, I am one of those who was diagnosed with CFS/FMS/Hashimoto’s as well as migraines and chronic Lyme following a tick bite and negative tests) so no treatment). I was sick for 33 years, the last 13 on disability. I had PEM and all the classic laundry list of symptoms such as brain fog, memory loss, digestion (IBS) and cardio stuff, etc.
From 2012-2015 I followed a Lyme protocol by a neurosurgeon and my functional level improved from 40% to 60%. I also did yoga, Tai chi, daily meditation, breathing exercises, regular massage and chiropractic, physical therapy, supplementation, hormones, and more. I did the ANS REWIRE program in 2018 and have been fully recovered since.
I work part-time by choice and am very physically and socially active. I am symptom-free and can eat whatever I want without repercussions. I think we have to collectively really carefully “listen” to all these recovery stories because when you pay attention you notice that there are common threads. My wish is that others will find their way to recovery.
Thanks for all you do. Claudia
I have to agree
He needs to make a living the same as anyone else does – particularly hard if you have been ill and out of work for 16 years (and have probably just lost your disability benefits). Why would anyone begrudge him making a living from his work? Everyone deserves that. I suspect he sells his book because he has to – and free on Kindle – well he’s been generous as much as he can be. I can’t see how him selling. A book can be cited as a reason for him not having ME! Very strange reasoning.
Ah apologies i somehow posted under the wrong comment!
I don’t object to these treatments at all Cort. I object to you spotlighting grifters.
I have done a many of these, as I said at the top – nothing new! Why are you spotlighting thing you have done already?!
I am really, really sorry that you, will all your experience – can’t tell the difference.
Sad you’ve boosted his sales.
Like I said – if you had listened – I haven’t tried many of these treatments – that’s one of the things that interested me in his book. Enough with this grifter stuff. If you want to object to a treatment and can give a reason why – then fine. Otherwise any comments that are insulting are not going to go through. This is why so many people are afraid to post something on the internet.
I mostly reversed CFS with minerals, interestingly my illness started 1 year after the agrochemical giant convinced our farmers to spray a herbicide directly on food crops right before harvest, in the past this same chemical was used as a broad spectrum mineral chelator that cleaned metal pipes, long before they patented it as a herbicide, many other diseases have tight correlations with this chemical’s usage on core crops, and before anyone says correlation doesn’t mean causation, well we now have the mechanisms too, just search for the pubmed study with this number 32398374.
Cort,
Thanks for presenting Jason’s info. There is little money to be made in writing books. Jason’s remedies all make biochemical sense concerning what we already know about ME/CFS.
Dozens of books, blog material and the like by experiencers and survivors re: living with chronic illness (especially anything inflammatory, including ME/CFS/CIRS/Lyme, etc.) have been marketed for many years, even decades. Some describe their self-help protocol processes; some do that plus direct people to pricey seminars and healing-related products. These myriad resources have helped most of us at one time or another and continue to do so.
When a post accuses writers of grifting, it is a red flag for me that a deep-seated bias may be shunting the assumer away from researching a new way of looking at healing that might actually prove beneficial if given an honest and consistent trial.
Why shouldn’t the guy sell a genuine book? He’s worked and suffered for it a lot more than most authors, and they get paid for their books. I’ve been searching for answers for over a decade and a lot of these things are new. Another thing you should know if YOU really have CFS is that it’s very hard to make a living because we can’t work as much as others can. I do it alone with no support, so trust me, if I could sell a book, make a little money, and help others at the same time, I darn well would.
Plenty of people host websites and add free information – Dr Myhill, Erica Verrillo, The roadmap – for instance. There is nothing new here. I know, I have been sick 30 years and I REALLY have ME not CFS, So, I guess we are different people. And making money from sick people in my own community? No, I would never do that.
So you had ME for 30 years, thats 30 years of experimenting with therapies. yet do cant have done nothing to heal, as you complain about this article, and are in disbelife
Dont tell me you spent 30 years in the hospital with doctors right, cause everyone with a iq above 80 knows they arent educated in curing disease.
Why havet you gone to a IV ozone clinic, 30 years ago??
Great article and I just might pick this book up as I am a big fan of alternative therapies. It’s unfortunate that many of them are so expensive. Here is a question for Jason or anyone else who has studied vitamin d – more and more people are claiming that vitamin d is actually a hormone, not a vitamin, and that high amounts could cause imbalances. Thoughts? Also, I have chronic migraines and if I take more than a 1000iu of vitamin d then my migraines become significantly worse. I have tried it enough times to know it’s the vitamin d. Any thought as to why this might be? My blood levels are typically a little lower than they should be but not dangerously low or anything like that. I have asked multiple doctors and no one knows why vitamin d makes my migraines worse.
Vitamin D is a hormone. This is not a claim, it is a fact. Hormones are complex, so it’s not surprising doctors do not have a reason Vitamin D makes your migraines worse.
Consider the vehicle of Vitamin D. Does sunshine make your migraines worse? Twenty minutes of sunshine (preferably mid-day between 11 am -1 pm) can increase Vitamin D. One study demonstrated more than twenty minutes starts to degrade Vitamin D, so it’s beneficial to limit exposure to twenty minutes.
Topical Vitamin D creams are better tolerated by some patients, especially patients with intolerant immune systems.
Consider it may get worse before it gets better. Since hormones are powerful, there may be a period in which your body is losing homeostasis. I wonder if the worsening migraines might subside after a week or two of Vitamin D.
D stimulates metabolism. Its effects parallel thyroid. You need to feed your body appropriately.
Many in my family suffered from mifraines. They noticed that whenever they tried dieting to lose weight (i.e. underate, specially lowered carbs), migraines ensued. They haven’t had migraines since they realized this connection.
We also need plenty of calcium.
Magnesium is required to utilize vitamin D so when you take high-dose vitamin D you are using a magnesium and potentially making yourself deficient. That’s probably why your migraines get worse.
Well, firstly, congratulations to Jason! What a committed journey he’s been through, and it’s great that it’s paid off, and is paying off. As for me, well…I had trouble just getting through all these recommendations! Yikes! I am turning 78, and I am grateful for being about 60% recovered. My quality of life is pretty good, I can grocery shop, work in our yard/garden, keep my severe pain under control (but I can’t work outside the home), sleep each night (with medications) and do house chores (in limited amounts). I take several of the supplements Jason has recommended. But living on Social Security with some Medicaid help, I just don’t have the money to try or use many of the things Jason has suggested, nor the commitment. However, the breathing and other techniques for calming the vagus nerve/parasympathetic nervous system are certainly worth trying. Thanks for this informative article, Cort!
Is sequence important or can you just grab one thing to try?
Also- did Jason have mast cell issues at anytime?
Some things, like fermented foods & fish oil are just off the map for me.
I see he takes modafinil. Cort, a while back I told you that this medication worked for me.
Stimulants are very interesting. A doctor recently wrote a book about them and ME/CFS.
Hello Cort,
Can you tell me please the title & author of this book written by a doctor about using stimulants for ME/CFS patients.
Thanks.
Joel Young – 2020 – https://www.amazon.com/Understanding-Treating-Chronic-Fatigue-Practitioners-ebook/dp/B08DP2122B/ref=sr_1_1?crid=3PZOSSQOA28ID&keywords=chronic+fatigue+syndrome+stimulant&qid=1663629248&s=books&sprefix=chronic+fatigue+syndrome+stimulants%2Cstripbooks%2C309&sr=1-1
Cort
Can you supply the title/author of this book?
I used that book to help my son recover. He takes methylphenidate and is recovered. He still takes R-ribose, curcumin, magnesium l, antihistamine, fludrocortisone, salt, melatonin, ashwagandha and multi vit/mins as well although we drop something every month
Good to hear Christobel,
Congratulations.
I bet the doc charges more than $14.99 for his book and i reckon he probably doesn’t need the money.
It’s good you didn’t lay any money on the table (lol). He’s a patient – not a doctor. The entire extent of your possible outlay with Jason is $14.99.
I took them on and off in the earlier years and they were helpful for me until they’,d wear off in the afternoons. However, when my CFS & Fibromyalgia both became severe 5 years ago, nothing helped with the fatigue.
Can you share the Name of the book and Dr.? Specifically which stimulants showed benefit? Any info on phentermine, for example?
Oops! If I hadn’t jumped on this and read down farther I would have seen your reply with the book link. Thanks!
Thanks for post Cort. Always happy to hear of and read recovery stories of our ME fibro folk. I’m happy for him.
Cort, thanks you for writing about Jason’s wonderful recovery!
I have FM with CFS and have never been able to exercise. All through my life people would laugh when I ran. They said I ran like ruptured duck. Later when I was in the 8th grade I failed at doing any sports or exercises. The gym teacher took pity & allowed me to quit, taking Spanish instead of gym/sports. I always attributed the fact I could not exercise to my FM but now I know it is my ME/CFS.
Just wanted to tell you my experience with exercise. Thanks again & do laugh out loud.
Ha! Isn’t that something! I wonder if there’s a whole bunch of people out there who just never liked exercise – because they had some form of ME/CFS….
Kay and Cort, a while back I read an article that was asking that same question.
I’m a bit alarmed at the casual way inhaling nebulized substances is mentioned. Our lungs are fragile and easily irritated and damaged. I know at least one instance where nebulized hydrogen peroxide caused permanent lung damage, and it’s specifically warned against by the Allergy and Asthma Foundation of America. We’re all so eager to feel better, and we get to a place where we’re willing to try anything – but research first, and avoid anything that could cause more damage.
Lying in bed unable to for anything is dangerous for us too. I’m not waiting another 33 years of hell on earth for this magical research to suddenly appear. I’d sooner have a chance at recovery, and injuries are an acceptable risk, especially because there’s very little research on most aspects of ME/CFS
I’d agree with you if there was plenty of ME/CFS research going on, but there’s not
Kat H, was this instance known to you the result of a treatment, or a chemicals handling accident?
Cort, did the author say anything on how this nebulized hydrogen peroxide is supposed to work? To be clear, hydrogen peroxide is a highly reactive agent that releases reactive oxygen species. It’s a bleaching agent and disinfectant, the same thing that’s been used for hair bleaching. “Food grade” is a bit misleading here, as it means “contains no impurities/added chemicals”, not that it’s completely harmless. It does seem to have a couple of home & kitchen uses https://mightynest.com/articles/8-reasons-to-keep-food-grade-hydrogen-peroxide-in-your-home .
So no wonder the author says you must not exceed a 3% concentration.
As for possible effects in the body, I found this (2009): https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2668804/ “Although reactive oxygen species (ROS) are generally considered to be proinflammatory and to contribute to cellular and organ dysfunction when present in excessive amounts, there is evidence that specific ROS, particularly hydrogen peroxide (H2O2), may have antiinflammatory properties. (…) results indicate that H2O2 has antiinflammatory effects on neutrophil activation and inflammatory processes, such as Acute Lung Injury, in which activated neutrophils play a major role.”
So if this is indeed an established treatment method, everyone please be aware the hydrogen peroxide is not a harmless chemical and may have medical use only in low concentrations, i.e. like many medications it may be a case where “the dose makes the medicine”.
P.S., Cort, having seen more critical comments below also on the book chapter about hydrogen peroxide because of the claims it makes that this can treat “any virus”, maybe if you plan on trying it,you could report later including if there is any science about its mechanism/s in the body yet…Cheers!
I understand your concern that peeps at least KNOW of possible detrimental effects AND, as an RN of 30+ years I was horrified to discover I’d never been taught/informed of the large risk of arrythmyias/& resulting deaths via cardiac arrest due to chronic use of many inhalers Rx’d/used for asthma–& that made foundations & associations for allergy & asthma professionals less reliable re: their agendas/biases–the fact that so much relevant health info & non-pharma/non-patented-medical device interventions were (still are) NOT included in our RN/MD curriculums & that pts lose-out/suffer/die b/c of that, means (for me) I will take your caution to heart/check it out, but I don’t necessarily put weight on the Allergy/Asthma foundation or others as trustworthy authorities w/out checking them out (for hidden agenda, etc.), as well. H2O2 is really inexpensive compared to Rx’s for inhalers & nebulizer meds that are also going into delicate lung alveoli/tissue/cells.
I dunno, nebulizing stuff like Hydrogen Peroxide is extremely dangerous as it has the potential for tissue damage if not done correctly. This seems sketchy to say the least.
Definitely not for everyone. In the book Jason reports that if you do take too much you’ll immediately feel a stinging situation and can back off. For me, I’ve never tried it but may give it a try.
About nebulized hydrogen peroxide. I have been using this for over 14 months and wish I had started sooner! I now use it 2xdaily prophylactically. I originally found out about it at the beginning of the pandemic. Dr Mercola featured Dr David Brownstein ND treating COVID patients in his practice car park. 107 patients,1 hospitalization, zero deaths. None ventilated. IV VitC and H2O2; arm out of car window. Intramuscular shot ? H2O2 in each buttock for low O2, for those who couldn’t breathe. & Nebulizers to deliver H2O2, & Iodine [ as I2 in KI Lugols Iodine] in Normal Saline.
Normal Saline:- 9g or 2 and a half tablespoons of himalayan pink rock salt boiled to dissolve in one litre of filtered boiled spring water, [ buy bottled spring water] Cool and bottle, store in the fridge. To 200ml saline add up to 25drops of 15% Lugol’s Iodine, and up to 90 drops of Food grade 6% hydrogen peroxide [H2O2] This is around 0.1% You can go higher, if it stings/smarts add more saline to dilute, It does not at 0.1%. Store in brown glass bottle in fridge. ( Figures based on a dropper that delivers approx 1ml / 25 drops, there is some leeway in this) Put 5ml [one teaspoonful] of this solution in a nebulizer and inhale the entire amount. DO THIS EVERY HOUR WHEN YOU ARE SICK UNTIL YOU START TO NOTICE AN IMPROVEMENT; THEN BACK DOWN TO EVERY 4-6 HOURS, CONTINUE UNTIL YOU ARE OVER THE ILLNESS. PROPHYLACTICALLY once or TWICE PER DAY. [Wish I had started prior to ‘flu like infxn instead of 3 days in when I managed to concoct everything!] word of experience , buy a desktop nebulizer, about £$ 50,[ hand held ones just don’t stand up to even one month’s use] Desktop is still going strong 15 months in with 2 users. Use the face masks ,[not the tubes] breathe in and out through the mask.
boosting the immune system function is imperative. Brownstein explained I2 iodine has direct virucidal effects; also stimulates & supportsthe immune system; increases killing effects of endogenously produced H2O2by WBCs by improving white blood cell[WBC]& thyroid function; which is one f the ways our immune system works to kill pathogens. Vitamin C directly increases endogenous, [within the body] hydrogen peroxide H2O2 production [when used in high doses] Vitamin A helps modulate the immune system. Perhaps if I had used the nebulizer sooner I would not have come down with infection and L Covid like symptoms on top of ME/CFS/FMS, but it has galvanized me to investigate even more ecological/biological solutions/ protocols. PEA palmitoylethanolamide is a multi functional adjunct to all the others, mitochondrial, immune, dietary, intermitant fasting, adrenal support, sleep support, exercise as able, pacing, avoiding PEM, probiotics, or fermented foods if you can tolerate, supplementation, tai chi, qui gong, dipragmatic breathing, meditation, attention to sleeping and neck/spine position & posture. I like the idea of the inflatable neck support, I have been using an anti snore pillow in the crook of my cervical spine to to alleviate the effects of C7 stenosis crushing nerves exits causing pain & disturbed sleep.
PEA supplementation is also useful for this and many other factors; by increasing the depleted(exhausted) naturally produced [endogenous] endocannabinoid. https://cimasci.com/wp-content/uploads/2019/09/Palmitoylethanolamide-in-the-Treatment-of-Chronic-Pain
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8157570/#sec9-ijms-22-05305
The devil is in the dose. Table salt can be fatal too, on dosages 12g+. Although you don’t think salt is extremely dangerous.
If you don’t have your own experience with nebulized hydrogen peroxide, statements like these are not appropriate.
I was wondering too.. could you end up with too much iodine??
For Linda and anyone interested in luggol’s iodine. I took a very conservative dose (can’t remove exactly, maybe 2 drops) and ended up with hyperthyroid and a goiter the size of a golf ball. Thankfully both went away after I stopped taking it.
As Kira warns, be very careful with iodine. I was symptomatic with undiagnosed (at that time) me/cfs and started taking a relatively low dose of iodine (as compared to what Dr Brownstein recommends in his book) based on claims this would help with my poor energy and insomnia. Instead, the iodine triggered Hashitoxicosis, which was absolutely hellish, and which took me from mild me/cfs to severe. I’ve never recovered. My thyroid hormone levels are back in range, and have been for years now. I was finally diagnosed with me/cfs by an MD who specializes a year and a half ago – over 20 years after onset. I wish I’d never touched doses of iodine higher than the US RDA; maybe then I wouldn’t have gone from mild me/cfs to severe.
So I was browsing around Amazon looking to see if there was anything interesting about ME/CFS and I did run across Jason’s book and was tempted to buy it. I think now I will.
I am an experimenter too and have tried some good percentage of his techniques. Modafinil is definitely a must have for me.
A doctor recently recommended I read ‘Breath’ by James Nestor. I’m about 1/4 of the way through and must admit I am intrigued and a lot of his observations corroborate Jason’s treatment protocol. The overall message is that nasal breathing is optimal. Being that I am mostly a mouth breather (thank you rhinitis and EDS), I am interested in trying to reverse this. Improper breathing=lower oxygen=less energy.
As I mentioned before I fell for the YouTube ProDentim ads (bad teeth, again thank you EDS) and found that after dissolving the tablet, my blocked nasal passage opened up for a few hours. The idea is that we have an oral biome (which gets decimated by some ingredients in certain toothpastes), and that a proper biome protects the teeth. As I observed, replenishing this biome also effects the nasal passages and probably other related structures. I know there are linkages of ME/CFS and the intestinal biome.
Also I noticed that one of the ME/CFS studies was using proteolytic/fibrolynic enzymes. I have been using a combination of them (there are many) and have really noticed my scars (again, thank you EDS) begin to shrink and disappear. The improvement is very noticeable.
For those of you who want to try psilocybin, one can find spores and growing instructions on-line. (I haven’t tried that one yet). I have had ketamine (as an anesthetic) and can confirm that it left me very clear headed and content afterwards.
So I guess it’s kind of back to basics like eating and breathing–in my search for healing…
Have you tried Buteyko breathing technique? It especially focusses on changing mouth breathing to nasal breathing. I have a friend who found it very successful and it also cured her hayfever!
@Lynne Turner;
As I have read only about 1/3rd of Breath, I peeked in the index and indeed Buteyko will be discussed. I have used various yoga breathing techniques in the past (alternate nostril, belly, and ‘breath of fire’) so maybe there are some similarities. And until I get to the chapter on Buteyko, I’ll continue with my didgeridoo!
As for nebulizing hydrogen peroxide, I remember Cort had an article on drinking hydrogen water. Hydrogen does have some scientific studies backing its usefulness for certain conditions.
re: “found that after dissolving the tablet, my blocked nasal passage opened up for a few hours. The idea is that we have an oral biome (which gets decimated by some ingredients in certain toothpastes), and that a proper biome protects the teeth. As I observed, replenishing this biome also effects the nasal passages and probably other related structures. ”
I found this part especially interesting & am wondering if you can tell me some more/give some resources b/c I have a friend who after years of tx & finally painful surgery STILL suffers from sinus infection/issues that cause also cause sleep disruption. She’s stressed w/caring for husb who has LewyBody Disorder & It would great if it turns out changing her teeth products could prevent/or lessen sx of any of it. Thanks!
There are many dental probiotic oral probiotic tabs to be found on Amazon (just for comparison and convenience sake) and through other, better sources other than the skeezy ProDentim. Formula strains in these tablets vary and can be easily researched in the medical databases.
Since all health originates in a tight junction gut microbiome, and that includes the mouth/teeth/sinuses, this approach is now helping me along with the other stuff being taken. See the writings of the very inspirational Dr. Zack Bush.
PS: There is a strawberry dental probio tab with no mint in it that will not antidote homeopathic remedies.
I have tried most techniques he mentioned and have to say my story is very similar in that I’m doing much better. I can especially relate to the nebulized H2O2, I wouldn’t be alive without it. Although his percentage is to high and can cause tissue damage if done frequently, 1 percent concentration is much more gentle for me and gives the same results, gets rid of any cold or flu china has to offer, in a hurry! Although it must be done several times a day if I’m sick and is still harsh especially in an infection state.
Here is the Center for Disease Control’s fact sheet on hydrogen peroxide vapor.
https://www.cdc.gov/niosh/docs/81-123/pdfs/0335.pdf
While this is discussing occupational exposure to hydrogen peroxide vapor, it is possible for anyone to be hyper-sensitive to this alternative treatment even at lower levels.
A more affordable option for EWOT.
https://www.onethousandroads.com/collections/home-page-collection/products/2000-series
Almost $1600? Not affordable for me.
Hi Tracy,
Did you get one of these systems? How do you find it?
I can see they saved on cost by using a slower O2 generator which I am fine with but I am always suspicious of online sellers who do not have a real world address displayed on their website?
I have 500+ ozone treatments (I self-administer with medical grade ozone). Ozone is an oxidative therapy like the nebulized hydrogen peroxide. I also did IV hydrogen peroxide.
Take away from these therapies, ozone is very adept at getting to viruses but not so effective for my primary infection which is bacterial. In my case, the bacteria are resistant to a number of things including ozone. I use another approach to address these resistant bacteria.
Ozone is very effective in addressing the toxin issue. Very good as a matter of fact. I found great help by using binders following the ozone treatments, such as zeolite and others.
Also, I have received great benefits from Lipid Replacement Therapy (I do a protocol at home which is budget friendly).
Also do many polyphenols spices and foods. Adaptogens such as turmeric, Ceylon cinnamon, moringa and others. Antioxidants are big helpers as well.
I thought a prescription was needed for oxygen, my brother needed one for his cluster headache treatment?
We use concentrators.
I use home Ozone a well, quite regularly. I find it good up to a point then it has negative effect on me. Not sure if it is a die off reaction.
On the Oxygen, I use welding oxygen. I checked it out quite a bit before I did it and all the sources I could find plus my doctor said it would not be a problem. So far so good. (Note I also put a carbon filter in the line pre-ozone generator just in case.)
Disappointed that you would run a story like this so uncritically. Ppl who are new to the disease may not realise that some of the ‘therapies’ mentioned carry a fair degree of risk.
What doesn’t carry risk, Fiona? I assume that you mean nebulized hydrogen peroxide. Anyone who takes the time to read the book – I assume anyone who tries nebulized hydrogen peroxide would do that – can decide for themselves whether its appropriate to try that.
It certainly helped Jason.
Moat medicatins preacribed by doctors carry significant risks, a.k.a. side-effects…
SSRIs and other anti-depressants are notorious for causing suicidal ideation leading to suicide for some, that didn’t even have it to begin with.
Google akathisia and watch some videos to get an idea what some medications do to people.
Metformin gave my friend the runs.
The way doctors were entubating corona-19 patients and pumping with oxygen at the beginning of the pandemic was causing death. See how they switched to outting patients on their sides.
Etc
A blog on hydrogen peroxide is coming up.
I’d love to know more about nebulisers and hydrogen peroxide/glutathione.
Great work Cort, don’t mind the nay-sayers. After working in publishing I know there’s hardly a cent to be made in writing books of this kind. Jason has done us a service in documenting his experience.
Fiona, surprised that you are not aware of the very high risks of many over-hyped pharma meds over the years; companies have paid out billions or more in damages and continue to do so. These statistics are easily found and researched. The c19 shot damage lawsuits will be a legal avalanche unlike any other; info continues to surface about the dangers of these shots.
There is a wealth of very effective relief and healing in natural approaches if handled with common sense. Many on this forum are alive and even doing well because of them.
It’s questionable for Jason to recommend a treatment to others based on his single experience (sample size 1), but if it’s his story, fair enough. But it seems really sketchy that he claims his treatment will also work for Lyme disease and long Covid,`without even a single test case… or am I misunderstanding the claim from that pull quote that you open with?
It sure makes him sound like a scam artist trying to make a quick buck off of sick people, and I’m surprised you’re giving his book such an uncritically positive review, Cort.
Almost all the treatments Jason tried and all the ones that really helped him have never been trialed in ME/CFS, FM and long COVID and almost certainly never will be trialed in any of these diseases. Given that what is one to do? Discard them?
I don’t mind at all that Jason thinks what he’s found could help long COVID. To flip this on its edge – why would we NOT think that? These diseases look so much alike that I would naturally assume that something that helps one would help the other.
Again – nobody is making a quick buck on a several hundred page that costs $14.99 or is free on Kindle Unlimited – and nobody who buys it and finds it doesn’t help – is losing much either.
I think the book presents some interesting possibilities – I stand by my review.
Nail on the head Fiona! Sounds like he’s just done the rounds of sickness groups without being sick at all doesn’t it!
Good lord Flip – The guy was sick for 16 years. You call him a grifter but I’m starting wonder if you’re are troll who just loves to stir up trouble. Why do I think that? Because here you are suggesting that he was never sick. That’s just going too far. There’s no reason to suggest he was never sick. Please get a grip
To be fair, I’ve only read reviews and a sample of his book but it doesn’t seem like a scam. But I do hope he includes some major disclaimers.
Otherwise advocating some of these methods would be fairly irresponsible.
I understand desperation when you’re extremely sick. But if you have any functioning at all, some of these could be dangerous.
There is so much that should/can be done to overcome this life-destroying malady. Its not time for overt, uninformed, critics of protocols and details of those shared. Yes, there are snake oils out there, but some of the real significance lies in the work of Dr Jacob Teitlebaum, Ron Davis, Nancy Klimas and other world immunological leaders in helping patients deal with their levels of systemic body systems failures. I speak from experience having a family member who has had their “life” taken away and are bedbound, at a young age. In keeping with your perspective, people new to this world should start with real authoritative specialists in ME/CFS; but also keep a more flexible open mind as well, but coordinate with their specialized practitioner.
Ironic that at one of my appointments Dr. Teitelbaum was labeled a “kook” (snake oil type promoter a la TVB’s comment above) for his more nature-based approach by one of Dr. Klimas’ MDs 15 or more years ago.
Dr. Klimas has always been on the cutting edge with Nature and Science partnering; her team uses the best of both worlds in their work at Nova.
Oof. I read Boyce’s chapter on nebulized hydrogen peroxide, and he’s just plain nuts.
So, as his rationale, Boyce publishes and endorses a long letter from some quack claiming that not just COVID but *every known virus* can be successfully treated this way (flu, West Nile, etc)! Boyce further claims that many doctors and medical schools know this, but keep it a secret because it’s not a profitable enough treatment.
Doesn’t it seem like a huge, flashing warning sign when somebody claims
a) to know the cure for every virus on earth and
b) that a global conspiracy of evil doctors is intentionally letting hundreds of thousands of people a year die from viruses by keeping it from the public?
Really disappointed to see Cort praising and promoting such a sketchy book without any qualms. I would have thought Cort was somebody who would see those as red flags, too, and it makes me take this newsletter much less seriously.
If Boyce and his doctor win the Nobel Prize for Medicine in a few years for curing every viral disease on earth, though, I’ll take this post back! Good luck guys! 🙂
Does the book have where to buy the equipment for nebulising and the other treatments? As that the hardest part, sourcing the meds, chemicals and medical equipment. Especially if we can’t get a doctor to agree to write a prescription
It’s available on Kindle Unlimited (you can do the free trial if you haven’t before) and covers this in Chapter 8.
I will warn you, I picked up the book planning to try this, but after actually reading the chapter, I decided not to. He wraps his treatment recommendation in some big and unlikely claims (this will cure all known human viruses) and huge conspiracy theories (doctors and med schools know this but have all agreed to hide it from the public for their profit). It was off-putting to me but your mileage may vary. If you do decide to try it, I hope it helps you!
We need more rigorous tracking of various treatments across different co-morbidities and demographic factors.
A retreat style housing model might be just the way to do this.
And, by the way, I’ve yet to see a long Covid demographic study. I suspect it’s likely we’ll see a higher incidence in poorer and polluted areas.
Of course higher income folks are also much more likely to get a diagnosis and not live in polluted places.
Cort, keep these recovery stories coming, I’m very thankful for these. There are many roads to recovery as everyone’s physiology is so unique. I got many new ideas I’m going to explore like nebulized hydrogen peroxide and glutathione.
Show the tests that prove he had ME or any disease or dysfunction in the first place. He wouldn’t have been 33 at the time would he? Can you confirm you think substantiated testimonies are better than documented facts?
I have the feeling that if Jason had recovered using antivirals you would be asking these questions. The same ones – mostly questioning whether someone had the illness for not – always come up with someone recovers using a treatment that others don’t agree with.
To be clear, I don’t require that people who come to me with recovery stories show me a doctor’s documentation that they had it. I take them at their word. If you require a doctor’s documentation before you will trust that someone has ME/CFS and recovered you’ll have to look elsewhere.
I suppose you meant “unsubstantiated testimonies”. Basically, all we have, except for a very few case studies, with ME/CFS and recovery stories are “unsubstantiated testimonies”. Again, if you require documented facts – however you define those – you’ll have to look elsewhere.
The recovery stories are present to provide possibilities. Not all possibilities will obvious appeal to everyone. It’s up to you to decide whether to try them out or not.
Any other successes stories taken the nebuliser approach? This is entirely new to me so I’m curious and wish to know more
What tests would those be?! I’ve had this illness 15 years and no tests confirmed anything for me.
“The almost 70 recovery stories found on Health Rising’s Recovery/Recovering pages . . . ”
I wonder how many ‘recovery stories’ represent recovery from M.E., and how many are cases of spontaneous recovery, which happen in (almost?) all illnesses.
Like Flip, and others, I am suspicious of anyone who claims to have found the key to recovery and then goes on to sell books or ‘self-help’ courses.
The ‘Lightning Process’ is a prime example.
To me the disturbing thing is not so much if someone says ‘this is what worked for me’, but if they say ‘this is a must, everyone should do it’. There are many different things that help *some* pwMECFS, but don’t help others or make them worse.
Agreed.
I think the intent is to break out of the learned helplesness.
When the trapped rats that had stopped trying to escape see one get free, their behaviour changes and they again try to get out of the maze.
(See Seligman if interested)
I found I got much better when I stopped comparing myself to others and focused on the things that were at play for me.
Spontaneous recoveries do occur but I think they’re pretty rare. Since we don’t know if I was to lean one way or the other I would take the recovery stories as legitimate. As to the Lightning Process, I can’t imagine that anyone who recovers from ME/CFS after a weekend at the LP is a spontaneous recovery story – it’s too much of a coincidence.
I have reduced had good results from Reduced Glutathione..energy,sleep mood ,digestion plus a few other things I resonate with in this article.
Also numerous allergies have abated.
Worth a try people from an old sceptic
I find vitamin D to be life changing, in an instant, when I get the right dose.
I tried first with sunlight – I do become weak easily and I do feel it burning my skin, so I stop before getting there. I tested blood levles after a few months and no change.
Ultimately sublingual did it.
I do eat plenty and get all my nutritional needs covered (vitamins and minerals and carbs and proteins and saturated fat). And lots of calcium, sufficient salt. It took a while to do that before getting on D.
I suspect most with an hEDS diagnosis – it’s largely a vitamin D defficiency. It affects mast cell stability, so can be behind any excess histamine issue even eczema.
Also, my hypoglycemia – gone.
The osteopenia and osteoperosis of hEDS –> high cortisol, low D, etc.
See the work of Dr. Gominack, for those interested in how to supplement and what levels are you shooting for.
Hi M, do you mean that sublingual worked but ingesting tablets did not?
I have suboptimal Vit D, but when I tried a high dose therapy I did not feel well with it (I think it made me very wired-up).
I know that I should take a litte like a 1000 I.U. every day, but I seem to have an bit of an aversion to it.
Do you suppose sublingual could work better for me? Thanks!
It sounds like a stress response. Did you take it when well fed?
Do you get good nutrition from your diet- do you know what good nutrition is?
I would make that 1000IU dose work before trying something more potent. I look for products with as close to 0 excipients as possible, to prevent any digestive inflammation.
You can look up an interview with Ray Peat and Kate Deering for a thorough understanding of D, including what healthy levels are.
And the clinical experiences of Stasha Gominak with her patients.
[One thing to watch out for is if you have hyphosphatasia]
I needed hefty initial dosing to get rid of my symptoms. I also have a history of low cholesterol, so that may have something to do with it. At times, very low D too.
Thank you for your reply and resources! Yes probably I should try and stick with the 1000 I.U. at least for osteoporosis prevention.
I have also found some other supplements overly stimulating – for example VitC works well when I have an actual infection, but I don’t like it so much on other days. Maybe my body its current state does not like immune stimulants for some reason…
Interesting, I have the opposite (high cholesterol).
About diet, I try to stay fed with a balance of nutrients including cooked and raw vegetables, avoid stuff that I am allergic to, and know I do well with proteins but not so much with fat. I am afraid I cannot follow any special diet as I need to stick to simple food preparations that I can prepare within energy envelope.
Would you mind sharing what VitD preparation you use? I might try and find something similar.
good blood levels ~ 50ng/ml. Is 1000IU getting you there?
Ascorbic acid is the reduced version of C. It can lead to reductive stress, which then sets off the stress response. This is true of all ‘anti-oxidant’ supps. It’s very useful when one can perceive when something is not helping, when it is.
Historically, I have had intense cravings for tart fruit juices in hot weather. This seems to be a need for C. I satisfied my cravings fully earlier this spring – I noticed I am no longer covered in mysterious bruises.
I ask again – what is good nutrition? How did you come to eat the way you do, how did you come to know that certain foods are good, others bad? Do you enjoy your meals, is the food delicious to you?
[To get you thinking, no need to answer me, or here, or right away]
I like to inform myself before taking a new substance. There’s always Stasha Gominak if you just simply want to take D and that’s it
High cholesterol = hypothyroid
High HDL = high endotoxin load
Easier boat to deal with than low 😉
I think there are a few companies making sublingual d, the oil topically also nice option – about 20% gets absorbed. You can also try rubbing into gums.
Alright, I want to point out that infra-red and red light can be get for free:
From the sun in the early morning hours, late afternoon.
If you have newer glass windows, they may block UV light, which means you have access to the reds and oranges and infrareds day-round.
This was key for me in beginning recovery, and continous to be.
To expose my skin daily to sunlight.
If you can handle it, when the UV index is right, you can get D too.
All for free
Cort, I commend you for posting Jason’s story and his book. As always, more information is better. Everyone is different, and you can pick and choose what you’d like to try. As I have said here before, I believe in trying everything that might even hint at helping me and continuing, or tweaking, or rejecting as the effects are experienced. I’m not waiting around for the traditional medicine magic bullet that will cure me in one dose. That’s not going to happen in my lifetime. Developing MCAS pissed me off but good. “This is not right! This is not fair! Something is doing this to me and I am goddamed going to find out what it is!” Being ridiculed and finding out no one wanted to help me only increased my pissed-off’d-ness. So I commenced reading about and trying everything I could get my hands on. Traditional medicine does not have all the answers. Alternative treatments don’t either, but some of each has helped me. I am better but not cured. I thought that I was reaching the limits of possible recovery, but now I’m not so sure. More stuff to try! This work has been the most difficult and intense study I’ve ever done (even harder that doing my Ph.D.) because it requires long-term trial and error on my own body, weighing risks and benefits, examining my own deep psychological constructs, and arranging my life to accommodate wide-ranging weirdness that even more people think I’m crazy for trying.
I wasn’t surprised that I found I am using many of the things he recommends: LDN is foundational for me. Glutathione is crucial, but I take (a lot of) liposomal glutathione. If I don’t, my nose bleeds for hours at a time. I may try nebulizing it. Red light therapy is also important. I take ashwagandha, astragalus, and 7-Keto DHEA three times a day with meals. NMN was a real game changer – I take one gram every morning when I wake up {this one was amazing from Day 1 and I’m still noticing small improvements every week}. Also in there are PEA, SAMe, H-1 blockers, ketotifen, acetyl-l-carnitine, r+ alpha lipoic acid, NAC, CBD, high dose D and E {this one helped my circulation a lot} and some more that he doesn’t mention. I’m working on my gut right now and I’m having a terrible time finding something, or many somethings, that will help. Fasting is on my list to try, but I have to eat something three times a day just to push all these pills down. I don’t know how I can integrate fasting into what I do at present.
I don’t fault Jason for writing a book. Dr. Afrin wrote a book and it has helped me. The Red Light Therapy book helped me. Cutting edge research papers helped me. This website has helped me a lot! I don’t expect help to be handed to me free and having someone constantly available on an online blog to nursemaid me through the steps, the advances, and the failures that will inevitably come with trying new things. All just so I can complain when something doesn’t work and throw up my hands? Nope. I’m doing this by myself. My self-experimentation is working and I’m not going to stop now. No one believed me when I got sick. No one would help me. Now no one believes me that I would be bed-bound if I didn’t do all these things. I don’t care what they believe anymore. I’ve lost friendships over this.
Keep up the good work, Cort. There are probably a lot more people than me that have been helped by your efforts but have not posted here. Information is key. The more the better. Don’t be discouraged.
I could not agree more! Thank you for your ongoing work, Cort!
Just today I found this:
“Five patients, aged 18-24, with the autoimmune disorder SLE (systemic lupus erythematosus) enrolled in a last-ditch, “compassionate-use” trial because they had not responded to conventional treatments and likely were headed for multiple organ failure and possibly death. Each was given a single dose of their own re-engineered T cells. Within three months, all five patients had essentially no symptoms of lupus and continued this way even after immunosuppressive drugs were stopped. As of now, they’re all still living normal lives again and have suffered no significant side effects.” (Daily Kos)
Here are two links about this finding:
https://www.nature.com/articles/s41591-022-02017-5.epdf
https://www.livescience.com/car-t-cell-therapy-for-lupus
An “immune system re-boot” ? Who would have thought this possible?
This is very interesting. Nobody really knows what starts the cascade of symptoms in CFS or FM. Autoimmunity has been suggested. If this T-cell method could be applied to CFS and FM with success, it could be the “Holy Grail” for people that suffer from these disorders.
Yes!!!! A high end publication. They suggest to test/expand it for other autoimmune diseases. Hope fibromyalgia and autoimmune me/cfs is on their radar. And for once I tend to believe that this could be a cure-all. It is central in cancer research as well. Some years of patience ahead to wait and see.
Ann,
I have the same “warrior-like” attitude that you have: I have been completely bedbound now for over 7 years & sick for 20.
All the help I have ever found – & so far it’s been help to support me from getter even sicker – has come from my own degrees in Biochemistry & my studies on my own. Luckily I’ve had docs who’ve been open to trying all my ideas. But I’VE done the work!
My Mom (a nurse practioner & MECFS advocate) keeps saying that there will be a med or a cure sometime soon [God bless her] but I rely on information & my own experiences & gut intuition at this point. That is why I commend Cort for including this story.
No one is going to “make” me better. I will find the road myself…. & possibly in the process, help a few others on the way.
Thank you for your post. Sorry it’s over a year later but you really touched my heart & mind! Bless you!
Thanks for this, Sherri. We just have to keep up to date on the latest findings. This site is a godsend for that. We keep posting stuff that works and we try things and we keep or reject things. Since I wrote this post I’ve eliminated things and added things and I am better as a result.
My newest things are Serrapeptase and Luteolin. In finding these things I eliminated about 4 others that didin’t work. For me, it seems to be a process of sifting information.
I just read the chapter on nebulizing hydrogen peroxide, and it seemed to me to have a few red flags. Boyce asserts that this treatment can easily cure humans of all known viruses (!!!!) and this is already widely known to doctors. However, they’ve kept this from the public because they would lose money on treatments if people could self-cure Covid, influenza, etc. He says this several times, and points out that potentially hundreds of thousands of people a year are being killed by this medical conspiracy.
I understand wanting to share Boyce’s individual recovery story, but disappointed to see Cort promoting this book uncritically.
I’m not promoting hydrogen peroxide – I said I’ve never tried and know nothing about it. I’m reporting someone who did very well on it. Others apparently have as well. It’s up for everyone to decide. According to Jason it’s not dangerous and if you have a negative side-effect you’ll know immediately. Of course, everyone should learn as much as possible about it before they try it.
No, I understand you’re not specifically endorsing the treatment regimen. But I guess I was surprised that you read his conspiracy theories and borderline-impossible claims and your takeaway was only that the book was “well-written, quite thought-provoking, and at times, hilarious… a labor of love… a fascinating read” instead of a more mixed review that would have tried to note the bad along with the good here. “This will cure all known viruses” is obvious snake oil.
I know you try hard to be positive with others in the field, and I do respect that. But as one of your daily readers, I also appreciate it when you point out problematic material for what it is. Thanks for all you do!
The point for me was not Jason’s promotion of the treatment that helped him after all his attempts to get well – but the fact that it made a huge difference for him. That’s what attracted my attention. Many people who get well feel that they’ve found “it” for ME. That doesn’t detract from the fact that they’ve found something that could help.
As I remember a major reason Jason writes that hydrogen peroxide is not being tested is because it’s very cheap and readily available and there’s no money in it for pharmaceutical companies.
Sort of, but he actually claims that the conspiracy takes place at the doctor and med-school level because (among other reasons) “it is not patentable, and there is no profit to be made as it’s an extremely cheap product”… “not profitable translates out to it won’t be taught in medical schools”. He even suggests your personal physician may be secretly treating him/herself this way while denying the care to others!
In reality, of course, if there was a cheap, universal, 100% effective antiviral as Boyce claims here, there would be a stampede of doctors and medical schools trying to win the Nobel Prize and eternal fame by proving it. (After all, it would literally be the most important finding in medical history.) Even if you somehow buy the profit motive for US doctors, countries with socialized medicine would have no reason to join Boyce’s alleged conspiracy to suppress the knowledge that they could easily cure all viruses.
I won’t flog the point further, but this all sounds like pretty standard “I want to sell you my pseudoscience” stuff, and I’m surprised you didn’t see it as meriting a little gentle pushback.
I don’t believe in this conspiracy stuff – I believe there are structural problems that prevent treatments from reaching doctors – no conspiracies needed and I do think that hydrogen peroxide is overhyped and I cringed at some of Jason’s statements regarding it. The most important thing for me, though, was that after trying so many things – it and glutathione were the two things that really worked.
I do think you have an overly positive view of doctors and the notoriously conservative traditional medical profession, though. Unless something is presented to them in the right way; i.e. with study evidence, they won’t consider it.
I don’t know that Jason is selling anything that other what worked for him. Call me naive but I genuinely believe that he wants to help and that’s his motivation for writing this book.
I made a mistake, though, by not digging into nebulized hydrogen peroxide further and I will remedy that.
Fair enough. If you were also cringing at some of this, it sounds like we were reading the same book after all! 🙂
I’d just say that as one of your readers, it’s helpful to me if you can gently mention clear cringe moments like that (sweeping conspiracy theories, claims to cure all known viruses) along with your praise when you’re reviewing a book. I really do value your opinion & insight, and I’d be interested to read nuanced reviews like that, not just uniform praise.
Well one thing this blog shows, and I think this is a very positive thing, is that a community has built on this blog. So if Cort lets us know about a new treatment that others might have concerns about, we’re very likely to hear about it in the comments 🙂 So, sometimes the flow of information goes both ways and I think this is a good thing.
I am convinced that not everyone who reads this blog has the ME/CFS that started around 1980 in California and on the east coast then moved across the country.
I am curious about how many people reading this comment have these symptoms:
1) chronic ringing in the head
2) significant weight loss, then weight gain of about 30 pounds
3) stomach bloating and food intolerance
4) migraine-like headaches that may resolve after some years
5) missing fingerprints (easy to test with an ink blotter)
6) crimson crescents in the throat
7) intolerance to all kinds of chemicals, perfumes, things that never bothered you before
8) a feeling of being poisoned
9) mushy muscles that seem to be disappearing
10) frequent infections
11) dizziness and imbalance
12) brain fog with difficulty word finding
13) extremely dry skin on the extremities
14) increased eye pressure and other vision problems
15) frequent urination
16) heat and cold intolerance
17) PEM
18) elevations in herpes family viruses (EBV, HHV6 A&B, etc.) also in mycoplasma and some bacteria.
19) wandering body pains
20) alcohol intolerance
There are probably more, but this is what came to mind just now.
???
Odd questin to ask..
Are you going to differentiate between ‘American’ ME/CFS, Banana Republik ME/CFS (my kind), Desert ME/CFS, British ME/CFS, Ex-British Colony ME/CFS, Whitie ME/CFS, etc
Too?
Or even by decade?
We don’t need more divsion.
M, have you read Osler’s Web by Hiliary Johnson, the most comprehensive and well-researched book written on ME/CFS?
Most of the problem is with micro definitions (this is not an attack on the other commenters). This is a disease of immune activation which naturally causes inflammation with lots of oxidative stress. This oxidative stress creates free radicals which damages cells/tissue/organs and finally the whole person.
Any recovery program is going to deal with the immune/inflammatory response and the antioxidant system. I made significant progress using these techniques.
@pbyr: Could you elaborate a bit on your onset and symptom set, and what exactly you did that ended up working for you? Thanks.
@Peter Thanks for your question. It was off the charts following a gut bug. I have an extraordinary research/treatment amount of time, which I am willing to share. I pretty much know the pitfalls and what to look for specifically. I have shaped a protocol that address a number of issues. I do some posts about this protocol, let me know if you want that link.
This is my blog post about findings.
https://patrickrambling-pb.blogspot.com/2017/01/myalgic-encephalomyelitis.html
Always willing to help (I have no commercial interests).
Betty – I have a host of symptoms similar to yours. The most significant are temperature intolerance. I have hot flashes that are nothing like what i experienced during menopause, balance problems, tinnitus, PEM, and intolerance of systematic noises like someone hammering, a weed trimmer, someone talking on their cell phone, or (and this drives me absolutely nuts) someone handling plastic packaging in a grocery store.
Dr levy mentions nebulised hydrogen peroxide in this interview, there’s a downlaodable pdf on his website.
https://www.youtube.com/watch?v=FgpvdnLAob0
It’s nice to read when someone has recovered. Or almost better. Especially after 16 years. I know a few ME/CFS patients who have gotten a lot better after 7 or 13 and even 20 years. I often see a difference. ME or chronic fatigue with or without POTS or FM or irritable bowel. Or some have all the symptoms. I wish Jason the best and I’m happy for him that he found something that helps.
I scanned the comments about Jason’s regime to get over ME/CFS. I don’t even have the energy to read the description in depth, much less handle the implementation of this course of treatment. I have a basket of supplements and meds next to my recliner. I can’t manage to get to them all. After a few days I start gagging on the taste and shrink from the effort. Just swallowing them is an effort. If there were one or two things that I could manage consistently, I think I’d have a better shot at it. Maybe the nebulized hydrogen peroxide and meditation. The only two things that have made any difference for me was a 10-day use of Augmentin after a cat bite, and the disappearance of symptoms after my first Pfizer booster after the initial 2-dose application. That benefit lasted about 6 months then faded away. I was hoping a second booster would have repeat effects but to no avail. I did do antiviral treatment years ago but it didn’t do anything.
Thanks for your blogs Cort
Perhaps for your future blog on hdrogen peroxide you could mention the gut lung axis as i think this gives an explanation why it may help us
Been reading up on molecular hdrogen an amazing substance
I’m interested. When do you think the nebulized hydrogen peroxide blog will come out? A week? A month?
Thank you.
Sorry that may have been a bit rude asking for the blog, take your time.
In the meantime I read the book “Chronic fatigue gone!” and ordered a nebulizer + peroxide. I ordered one that is <45 decibels because most are <65 db and I saw a youtube video in which they were way too loud.
What sold me on hydrogen peroxide is that it works on many of the mechanisms of hyperbaric oxygen therapy, which is a proven therapy.
If you want a good paper on how HBOT works, read this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7355982/
HBOT is not available in Canada, and HBOT has side effects for many like middle ear barotrauma. H202 is very inexpensive and convenient as well. If I can even get 25% of the effects of HBOT I would be extremely happy.
There is a lot of kickback online against hydrogen peroxide use, saying "at 35% it can kill you!!" or "It is a cleaner, covidiots will drink bleach to clean their insides too!".
Hydrogen peroxide exists in the body naturally, and at lower concentrations there should be very little side effects. I'm going to be diluting it to 1% H2O2, to be safe.
Because of the negative reputation of H2O2 I feel like I'm committing a medical sin. But so far I believe in the mechanism. I was skeptical of the magnitude of the peripheral effects, but the fact that some people are getting significant peripheral side effects at higher doses shows it is getting deep into the body. If someone is getting significant side effects from H2O2 that is likely from oxygen toxicity, which means oxygen really is being delivered in high amounts.
This week. 🙂
Sounds interesting. Also sounds really really expensive!
I’ve tried a lot of the supplements he used to heal and I can say that many of the same ones got me from being severely bed ridden to being able to work part time and do my own errands. It was however ridiculously expensive and I wish these types of healing modalities were more accessible to everyone because they really can be a life changing difference.
Natasha
So when is the book coming out!!!???
Just bought Hydrogen Medicine by Mark Sircus(2021)
He goes into dosages and saya the iller you re the more H2 you wii need. He mentions 2 hours a day.
Hey Cort
Intrigued by nebulised hydrogen peroxide. Question was it breathed in by mouth or was the nebuliser mask over the nose too? I am wondering if the positive effect could be eliminating chronic sinus infections or even normal bacteria (staph??) rather than anything to do with lungs or overall metabolism. 25 years in and I have always felt my sinus’ were not right. pain, post nasal drip with sore throats etc. etc. Very difficult to treat except with something like a nebulised antiseptic
He used an actual nebulizer so I assume it was taken in through the nose.
That’s a good question, maybe you can ask him about it? Looking forward to the blog.
I have to agree that promoting a book for sale based on his experiences sticks in my craw. His right and his decision, of course. With inflation being the worst in 40 years, I can no longer afford the few supps that were helping me, and I am getting sicker. Always glad for those who go into remission/get better, though. Jason’s choices are too pricey for many of us, but glad he could afford them.
How many years has Jason been out of work? How much money has he had to spend on trying to get well? How many hundreds of hours does it take to write a book? I’m sorry your financial situation is so bad but I think $14.99 is OK.
Hydrogen. Apart from helping us it could also help save the planet!! See the book The Hydrogen Revolution by Marco Alvera.
been a hydrogen propenant for a long time. not expensive enough for phamaceutical companies to even mention it. works on many, many problems (within reason)
Can anyone elaborate on the recipe and procedure for nebulizing s-acetyl-glutathione.
Definitely got a buzz from the nebulized peroxide first time. We’ll continue with this protocol and see if it works out for me.
Appreciate all the information and comments.
Another way that hydrogen could help us is by dealing with the issue of iron overload or iron dysregulaation.
Google molecular hydrogen iron overload
I got my hydrogen peroxide + nebulizer yesterday morning. 2 day shipping was pretty nice from amazon.
Nebulizer was pretty loud, even though it was a <45 db model. Some of the rechargeable portable nebulizers are 0 db to 20 db and I kind of wish I got one of those.
When I tried using the mask instead of the mouthpiece the mist got into my eyes and stung a bit. I think I will only be using the mouthpiece.
I've taken 4 doses so far. I diluted 1 ml 3% hydrogen peroxide in 2 ml water.
– First dose I noticed mental clarity and more relaxed muscles. My most stubborn and hard to relax muscles are my right jaw muscles, and they became almost fully relaxed, more relaxed than it has been since I got ill. My posture was a little easier to maintain.
– Second dose 4 hours later I tried a double dose, 2 ml 3% hydrogen peroxide in 4 ml of water. This helped a bit but not nearly as much as the lesser dose. The higher dose made me feel a little foggy and fatigued. I still got a little relaxed on it.
– Third dose before bed I tried a 1:1 ratio of 3% H2O2 and water. It irritated my lungs a bit too much, I was coughing. I think 1:2 ratio is the sweet spot.
I noticed I slept much better, sleeping felt more natural.
– Fourth dose the next day, morning, woke up being a bit more energized than usual and after nebulizing the 1:2 solution noticed the same relaxed feeling and slight mental clarity.
I'l update again after a week.
I am using solution diluted down to 1% @ 2 % I find it causes to much irritation.
Find I have a clearer head and some improvement in energy. Improvement has been maintained over 3 weeks now, though I need to keep up the treatment.
Same problem with mist in the eyes, but I think it helps my sinuses so I just close my eyes for the duration.
Curious about the EBV living in the spine,he mentions. I recently had a viral PCR DNA panel.. EBV, HSV CMV much to my suprise they all came back negative!! I dont understand this considering I still get HSV 1 flares from time to time..
does anyone understand and can explain this?
Ketamine therapy sounds interesting..and expensive!
thanks!
I just finished 4 IV infusions of ketamine (0.5 mg/kg), over 2 weeks, in a hospital outpatient setting. Unfortunately, I did not find it helpful with respect to my CFS/ME. I was also unlucky as I did not tolerate ketamine well, initially. My first infusion was awful; I suffered through it with several nasty side effects. Fortunately, my tolerance did improve with subsequent infusions; the final infusion was the easiest to tolerate. Another positive is that the side effects were short-lived (thankfully, as they were intensely uncomfortable).
I just thought to share my personal experience (and happy to answer any questions), but it should be noted that responses to ketamine are highly variable. I guess I was just unlucky!
As just wrote on the followup to this article (‘Nebulized Hydrogen Peroxide – Harm or Help? An Inquiry’ Health Rising
https://www.healthrising.org/blog/2022/10/07/nebulized-hydrogen-peroxide-harm-or-help-an-inquiry
Finally received the kit, am going to try it the peroxide glutathione part. All the other recommendations in the book I either can’t afford and or don’t have the focus for. Will update as progress. Thanks
Jason’s book is noted as out of print (unavailable) on Amazon. Will a reprint be coming in the future? Thank you