ME/CFS Advocates Press NINDS Director For Comprehensive Plan To Battle Disease
We worked together with a group of ME/CFS advocates to submit a set of recommendations to NINDS as it ramps-up research into our disease. The recommendations, shown below, were prepared by the NIH Working Subgroup and endorsed by many of the organizations and...NINDS Director email: NIH study enrollment requires PEM and CCC
Several #MECFS advocates and I received an email this afternoon from Dr. Walter Koroshetz, NINDS Director, providing written clarification of enrollment criteria for the NIH Clinical Center Study: Dear colleagues, Thank you for communicating your concerns. Having...ACT NOW: Just Say NO to Funding Cuts for ME/CFS Research
ALERT: Senate Cuts CDC’s funding for CFS to Zero, gutting 50% of federal research funding for ME/CFS NO Funding Cuts: One Clear, Consistent Demand for Equal Funding By Robert and Courtney Miller and Cort Johnson While patients advocate for Equal Funding for...Update on Email Campaign for Equal Funding
Emails Seek Equal NIH Funding for ME/CFS: 213 so far! Patients have kicked off the email campaign for Equal Funding at NIH with a bang! At least 213 emails have been sent to Secretary of Health Sylvia Burwell and Dr. Francis Collins, Director of National Institutes...Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
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