ME/CFS Advocates Press NINDS Director For Comprehensive Plan To Battle Disease
We worked together with a group of ME/CFS advocates to submit a set of recommendations to NINDS as it ramps-up research into our disease. The recommendations, shown below, were prepared by the NIH Working Subgroup and endorsed by many of the organizations and...NINDS Director email: NIH study enrollment requires PEM and CCC
Several #MECFS advocates and I received an email this afternoon from Dr. Walter Koroshetz, NINDS Director, providing written clarification of enrollment criteria for the NIH Clinical Center Study: Dear colleagues, Thank you for communicating your concerns. Having...ACT NOW: Just Say NO to Funding Cuts for ME/CFS Research
Patients protest Congressional subcommittee that attempts to cut the budget for ME/CFS in halfUpdate on Email Campaign for Equal Funding
Emails Seek Equal NIH Funding for ME/CFS: 213 so far! Patients have kicked off the email campaign for Equal Funding at NIH with a bang! At least 213 emails have been sent to Secretary of Health Sylvia Burwell and Dr. Francis Collins, Director of National Institutes...Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
