The Power of the P2P and IOM: Pressure Builds for NIH To Increase Research Funding for ME/CFS Two scientific reports in two months by experts independent of the ME/CFS field say the same thing: “The committee stresses that more research is urgently...
Take Action Patients Needed: PART 1: Instructions to Take Action To All ME/CFS –S.E.I.D. Patients, Family and Friends, As most patients know the IOM and NIH P2P have released some positive findings in our disease. While there is...
ME/CFS ACTION: A new Secretary of Health is about to be confirmed by the U.S. Senate. Sylvia Mathews Burwell is currently the Director of White House Office on Management and Budget, and she is known as effective and numbers oriented. She is also closer to President...
ATTENTION ME/CFS COMMUNITY We the “FDA Team” are asking you to send the message below to the FDA and to listed members of Congress. The recent patient-focused drug development meeting held by the FDA was a start – but only a start. The FDA stated...
(This is unusual…the ME/CFS community has been so good at supporting advocacy efforts that it’s shocking when it doesn’t happen. Last December, for instance, the ME/CFS Community so swamped the FDA during the Ampligen Advisory hearing that they...
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