Hearing Requested for Denial of Treatment For ME/CFS
Take Action Patients Needed: PART 1: Instructions to Take Action To All ME/CFS –S.E.I.D. Patients, Family and Friends, As most patients know the IOM and NIH P2P have released some positive findings in our disease. While there is...
Madame Secretary Meet the ME/CFS Community: The $50 Million Dollar Research Funding Campaign Pt. II
ME/CFS ACTION: A new Secretary of Health is about to be confirmed by the U.S. Senate. Sylvia Mathews Burwell is currently the Director of White House Office on Management and Budget, and she is known as effective and numbers oriented. She is also closer to President...ME/CFS Patients Call To Action: Advocates Call for FDA to Hold ‘Real’ FDA Stakeholder’s Meeting
ATTENTION ME/CFS COMMUNITY We the “FDA Team” are asking you to send the message below to the FDA and to listed members of Congress. The recent patient-focused drug development meeting held by the FDA was a start – but only a start. The FDA stated...Oh No! ME/CFS Community MIA Thus Far on Historic Opportunity: FDA Drug Development Workshop Needs Your Comments!
(This is unusual…the ME/CFS community has been so good at supporting advocacy efforts that it’s shocking when it doesn’t happen. Last December, for instance, the ME/CFS Community so swamped the FDA during the Ampligen Advisory hearing that they...Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
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