Jen X’s remarkable and full recovery from a long-term case of severe ME/CFS using Rinvoq, otherwise known as upadacitinib, has put it and the other “citinib” drugs in the spotlight. This blog takes a deeper dive into what happened and what’s going on with these drugs…
ME/CFS was looking pretty darn good a couple of months ago. Led by Vicky Whittemore and Joesph Breen from the NIH, and Lucinda Bateman and Maureen Hanson, ME/CFS experts spent hundreds, if not thousands, of hours over the past year painstakingly preparing an...
In a surprise, Monica Bertagnolli, the new head of the NIH, sat down with a long COVID and ME/CFS investigative journalist to discuss the two diseases.
An $11 billion dollar moonshot for long COVID, ME/CFS and other post-infectious diseases… Now that’s real money! The Patient-Led Research Collaborative for Long COVID called the “The Long COVID Research Moonshot Act of 2024” a “historic...
The GIST is towards the bottom of the post Check out Geoff’s narration The GIST The Blog Highlights from the ME/CFS Roadmap Presentation at the Spring NANDSC Meeting VIcky Whittemore, Lucinda Bateman and Maureen Hanson presented recommendations produced...
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