Solve ME 2023: Bold Initiatives, Opening New Doors, Making ME/CFS a “High Priority” Disease, and More.
Earlier this year I talked with Solve ME’s Chief Executive Officer Oved Amitay and Vice President of Advocacy and Engagement Emily Taylor. I wanted to know what was going on with the oldest U.S. ME organization. Since its founding in 1987, Solve ME (originally...
Four Weeks at the Clinical Center: Brian Vastag on the Soon-to-be-Published NIH ME/CFS Intramural Study
(Brian Vastag comes full circle. A former employee of the NIH, Vastag’s Washington Post letter to NIH Director Francis Collins “I’m disabled. Can NIH spare a few dimes?”, in conjunction with the recently published IOM and NIH Pathways to Prevention...
A Billion Dollars Later, STAT Asks What’s Up with the RECOVER Long COVID Initiative?
Entirely devoted to health news, STAT is much more than a medical update site like, say, Medical News Today. Not content to simply report the latest breakthroughs, STAT thrives on investigative reporting that gets behind the scenes and holds institutions accountable....
The Good, the Bad, and the Strange: the RECOVER Initiative Long COVID Grants
From the beginning, the RECOVER Initiative has focused on building out the massive infrastructure needed to follow and study approximately 18,000 participants. Hundreds of millions of dollars have been spent creating the main thrust of the Initiative. About a year...
Counterpoint: Yes, Long COVID is Helping Chronic Fatigue Syndrome (ME/CFS)…
This is a response to Alice’s thoughtful blog, “No, long COVID is not helping ME/CFS – and we should stop pretending that it is…” No, Long Covid is Not Helping People with ME… Alice’s blog was carefully written. She wrote,...Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
