The NIH recently found a way to kick the chronic fatigue syndrome (ME/CFS) community in the teeth again. Jack Reacher couldn’t have done it any better. You have to give it to the NIH: they’re nothing if not masters of disappointment. Almost five years ago...
The NIH launches a mammoth effort to quickly understand and find treatments for long COVID that will follow tens of thousands of patients and include hundreds of researchers.
The Hunt for More Funding For ME/CFS This is the fourth in a series of blogs on advocacy topics as we enter into the prime advocacy period of the year. Study Finds ME/CFS Most Neglected Disease Relative To Its Needs ME/CFS Experts Speak Out in #MEAction’s Long Covid...
Chronic fatigue syndrome (ME/CFS, ME) receives by far the lowest amount of research funding relative to its disease burden from the National Institutes of Health.
Virtual Lobby Day and Lobby Week is fast approaching, but this is not your average Lobby Day. In fact, we may not see its like again. The stars have finally been aligning for us. Long COVID is a hot subject – it just got over a billion dollars in funding....
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