Study Finds ME/CFS Most Neglected Disease Relative To Its Needs
This is the third in a series of blogs on advocacy topics as we enter into the prime advocacy period of the year. ME/CFS Experts Speak Out in #MEAction’s Long Covid Media Conference Time to Strike! Sign Up for a Monumental Virtual Lobby Day “America’s...
Time to Strike! Sign Up for a Monumental Virtual Lobby Day
Virtual Lobby Day and Lobby Week is fast approaching, but this is not your average Lobby Day. In fact, we may not see its like again. The stars have finally been aligning for us. Long COVID is a hot subject – it just got over a billion dollars in funding....
Lyme Disease is “Making It – Is Chronic Fatigue Syndrome (ME/CFS) Next?
No reliable diagnostic criteria, no validated treatments, controversial, lots of people affected … paltry funding. It sounds like chronic fatigue syndrome (ME/CFS) but it’s actually post-treatment or chronic Lyme disease. The numbers are similar (about...
From $1.15 Billion in Long COVID Funding to ? Emily Taylor on What Happened and What’s Next for ME/CFS
The Long COVID Funding The 2020 COVID-19 Economic Relief bill had been months and months in the making, and while Emily Taylor, the lead advocate for the Solve ME/CFS Initiative (Solve M.E.), had publicly shared nothing, she was keeping a very close eye on the long...
Large Long COVID Study and Major Media Articles Underscore Link to ME/CFS – Plus Countdown for the NIH
ME/CFS scores as a large study cements the link between it and long COVID just after over a billion dollars is slated to go for long COVID research “The findings show that—even in those people who don’t require hospitalization for severe COVID-19—the...Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
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