Did a Pivotal Moment For ME/CFS Just Happen?
The National Institutes of Health (NIH), with its pitiful funding, has been a thorn in the ME/CFS community’s side for decades. For decades advocates have thrown everything they could – heartbreaking stories, demonstrations, insults – at the NIH in...
The Big Ask: NIH Working Group Pushes for Strategic Approach To ME/CFS At Council Meeting – Sept 4th
Beginnings In 2016, Vicky Whittemore asserted before NANDSC (the National Advisory Council for the Institute for Neurological Disorders and Stroke (NINDS)) that a desperate need existed to bolster research for chronic fatigue syndrome (ME/CFS). (NANDSC Council is the...
Dr. Klimas’s Big Win and What it Means for Chronic Fatigue Syndrome (ME/CFS)
I listened miserably to the sounds of silence broken by my occasional exclamations: “really?”, “no kidding”, “fascinating!”. During my two long sessions with Dr. Klimas, the recorder app on my phone had decided to record only my...
Straight Talk From Carol Head As She Steps Down From Solve ME
ME/CFS Rears Its Head Again A commitment to social justice runs in Carol Head’s blood. She founded a non-profit which has given away millions to support entrepreneurs who work on global poverty, and was a founding board member of another non-profit that tells the...
How to Build the ME/CFS Field: The NIH Wants Your Input
The NANDS Council Working Group for ME/CFS Research is a NINDS (National Institute of Neurological Disorders and Stroke) effort designed to get NINDS off its butt (so to speak) and accelerate the research done on ME/CFS. It will ask NANDS – the group which...Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
