Please note this is an action for U.S. residents. HR 7057: The Understanding COVID-19 Subset and ME/CFS Act HR 7057 is the ME/CFS community’s first ever attempt to fulfill a dream: a House Congressional bill that begins to address the decades of neglect from the...
Opportunity and Danger It’s getting to crunch time. This is a time of both opportunity and a time of danger. The coronavirus situation – as tragic as it is – is nevertheless providing a unique opportunity for the chronic fatigue syndrome (ME/CFS) field. It presents...
A demon on one’s life. What a ripe metaphor for chronic fatigue syndrome (ME/CFS). A demon – a kind of slippery, malevolent, unearthly being – difficult to get one’s hands on. Difficult even to see… On one’s life. Not around...
In the third of a series of interviews since full-time ME/CFS advocate Emily Taylor joined Solve ME, I talked to her about what the heck is going with advocacy. I learned a lot. In particular, I learned there’s a lot going on that I didn’t know about....
The Washington Post is running an excellent story, “Patients push limits for clues to chronic fatigue syndrome”, on ME/CFS and the NIH’s ME/CFS intramural study. The featured story – of Zach Ault, a father, who while training for a...
A FOIA and Jennie Spotila’s analyses indicate the NIH funding for ME/CFS is heading in the wrong direction. Into the Dark Side Researchers abandoning the NIH? Significant drops in funding? Who could have imagined it would have gone this way four years ago when...
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