Reflections on the MEAction Blog, An Apology – and a Promise
The #MEAction post (retitled after I calmed down to “#MEAction’s Support Needed On Bill to Increase NIH Funding”), has stirred up a lot. Boy, did it stir up a lot. It was understandable; the post was, after all, composed in quite a state of heat. I...
Opportunity Knocks – For Action on the Bill to Double ME/CFS Funding
Health Rising readers have gotten quite a few blogs on the effort to get Congress to dramatically increase NIH funding for ME/CFS (HR 7057) – and here’s one more. As so often happens, something has unexpectedly come up – and time is short. Congress...
All-Hands-On-Deck Time To Double ME/CFS Funding at the NIH
Please note this is an action for U.S. residents. HR 7057: The Understanding COVID-19 Subset and ME/CFS Act HR 7057 is the ME/CFS community’s first ever attempt to fulfill a dream: a House Congressional bill that begins to address the decades of neglect from the...
“We’ve Got You Now” – Historic Effort to Increase NIH Funding for ME/CFS Begins Amid Signs of Change
Opportunity and Danger It’s getting to crunch time. This is a time of both opportunity and a time of danger. The coronavirus situation – as tragic as it is – is nevertheless providing a unique opportunity for the chronic fatigue syndrome (ME/CFS) field. It presents...
“A Demon on My Life”: Online Play about ME/CFS to Air Soon
"A Demon on My Life" is a play about a dancer and her husband coming to grips with her inability to dance after coming down with chronic fatigue syndrome (ME/CFS)Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
