In the third of a series of interviews since full-time ME/CFS advocate Emily Taylor joined Solve ME, I talked to her about what the heck is going with advocacy. I learned a lot. In particular, I learned there’s a lot going on that I didn’t know about....
The Washington Post is running an excellent story, “Patients push limits for clues to chronic fatigue syndrome”, on ME/CFS and the NIH’s ME/CFS intramural study. The featured story – of Zach Ault, a father, who while training for a...
A FOIA and Jennie Spotila’s analyses indicate the NIH funding for ME/CFS is heading in the wrong direction. Into the Dark Side Researchers abandoning the NIH? Significant drops in funding? Who could have imagined it would have gone this way four years ago when...
A British film team travels to the Central Valley in California to ask the exercise physiologists at Workwell about the effectiveness of graded exercise therapy (GET) in ME/CFS. Then they turn to the notorious PACE trial. First Voices – then Dialogues –...
“With glowing hearts we see thee rise” From the Canadian National Anthem The tides are indeed rising for chronic fatigue syndrome (ME/CFS). Just three years ago, a grant application to create “an interactive and coherent Canadian network in...
With regards to research funding, infrastructure development, creativity and sheer energy - there's no doubt that the smaller ME/CFS community is far ahead of the much larger fibromyalgia community. The question is why and what can be done to unleash the FM community's vast resources.
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