A British film team travels to the Central Valley in California to ask the exercise physiologists at Workwell about the effectiveness of graded exercise therapy (GET) in ME/CFS. Then they turn to the notorious PACE trial. First Voices – then Dialogues –...
“With glowing hearts we see thee rise” From the Canadian National Anthem The tides are indeed rising for chronic fatigue syndrome (ME/CFS). Just three years ago, a grant application to create “an interactive and coherent Canadian network in...
The similarities are striking: the symptoms, the shoddy research funding, the poor treatment from doctors, the gender imbalance and the stigma both still face. Both diseases still really exist on the fringes of medicine and medical research. Yet one disease is moving...
The National Institutes of Health (NIH), with its pitiful funding, has been a thorn in the ME/CFS community’s side for decades. For decades advocates have thrown everything they could – heartbreaking stories, demonstrations, insults – at the NIH in...
Beginnings In 2016, Vicky Whittemore asserted before NANDSC (the National Advisory Council for the Institute for Neurological Disorders and Stroke (NINDS)) that a desperate need existed to bolster research for chronic fatigue syndrome (ME/CFS). (NANDSC Council is the...
I listened miserably to the sounds of silence broken by my occasional exclamations: “really?”, “no kidding”, “fascinating!”. During my two long sessions with Dr. Klimas, the recorder app on my phone had decided to record only my...
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