In November 2015 NIH Director Francis Coillins said that NIH was going to “ramp up” funding for ME/CFS and that it would be “substantially greater” than the current five or six million dollars a year the disease was getting. “Just watch...
Chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) have a long, long way to go before they get the attention and resources they deserve. It would take a heroic leap to quickly achieve what people with these diseases deserve and what the diseases themselves...
The NIH laid a huge egg when someone invited Edward Shorter, a Toronto psychiatrist who makes Simon Wessely look like an angel, to speak on ME/CFS. Shorter not only denies the disease exists but calls ME/CFS patients “groaning victims” and belittles their...
The NIH should be releasing it’s increased funding for chronic fatigue syndrome (ME/CFS) soon. As we wait for that let’s take a look at several things that have happened in the last month and assess where we are, and what we have learned. The first thing...
“We are going to ramp this up.” Francis Collins Should you attend the MillionsMissing protest for more funding? Consider this. It’s been almost a year since NIH Director Francis Collin’s pledge to greatly expand chronic fatigue syndrome...
The issue at stake was a big one. It asked whether changes to the original protocol of the PACE trial ended up stacking the deck. It was easy to see how they might have; some of the recovery criteria were so weird as to seem ridiculous. The changes in the studies...
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