The “Keep Psychiatry out of the NIH Study on ME/CFS” petition has been signed by over 2,000 people and, on the face of it, it makes sense. Who would want psychiatry in one of the most important studies ever done on ME/CFS? I certainly wouldn’t. But...
(Health Rising is publishing Jorgen Jelstad’s blog with the intent to underscore the work ahead for ME/CFS as International Awareness Day approaches on May 12th. May also happens to be the month that the NIH’s Working Group for ME/CFS will apply for...
As we appear to be finally turning a corner at the federal level, Prohealth’s Advocate of the Year Award gave me the opportunity to sit down and reflect on the long arc of ME/CFS advocacy. That made me realize how dependent the successes of the present have been...
The NIH held a telebriefing with about 100 ME/CFS advocates, researchers and supporters Tuesday morning. This overview is taken from my notes of the meeting. The Big Three – Dr. Francis Collins, Dr. Koroshetz and Dr. Nath – were all there – and that...
Thanks to Simon and MEAction for allowing Health Rising to post Simon’s exposition of the truly remarkable chronic fatigue syndrome (ME/CFS) study about to take place at the NIH. This blog first appeared on MEAction. Most images and captions were added by me...
Another week – another controversy for ME/CFS and the NIH. ME Action’s recent post stating that the lead clinical investigator in the NIH’s big intramural study believes ME/CFS and FM are psychosomatic disorders has understandably raised a storm of...
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