Migraine does not do well at the National Institutes of Health (NIH) and that’s a surprise. Migraine has been recognized as a disease for hundreds of years. It has a basketful of drugs approved for it. It’s a prevalent, well-known disease and the economic...
We now know why the Senate Appropriations Committee zeroed out the CDC’s $5.4 million budget for chronic fatigue syndrome (ME/CFS) for next year. It wasn’t because someone was out to get ME/CFS. (It also wasn’t because someone was trying to help...
ALERT: Senate Cuts CDC’s funding for CFS to Zero, gutting 50% of federal research funding for ME/CFS NO Funding Cuts: One Clear, Consistent Demand for Equal Funding By Robert and Courtney Miller and Cort Johnson While patients advocate for Equal Funding for...
Fibromyalgia gets about double the funding of chronic fatigue syndrome, but of all the female-dominated chronic illnesses found in the NIH’s bottom forty in funding, only endometriosis gets lower funding per person (about $1/year). In fact, per person affected...
The Bottom Forty at the NIH The first part of this blog series was focused on chronic fatigue syndrome and fibromyalgia. Now, in an effort to understand why these disorders get such poor funding, the focus broadens to the bottom forty of the two hundred plus...
The cause of chronic fatigue syndrome’s decades long funding problems have prompted much speculation and finger-pointing. If only the CDC had taken the Incline Village outbreak seriously, or if Stephen Strauss had never showed up at the NIH, or if Bill Reeves...
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