Hearing Requested for Denial of Treatment For ME/CFS
Take Action Patients Needed: PART 1: Instructions to Take Action To All ME/CFS –S.E.I.D. Patients, Family and Friends, As most patients know the IOM and NIH P2P have released some positive findings in our disease. While there is...
A New Name For Chronic Fatigue Syndrome? The Community Weighs In
About 4500 people saw the survey and about 550 took it. The survey consisted of a ranking mechanism that allowed the participants to rank their favorite names from first to last. The survey tool from Gravity Forms then produced an aggregate score. Survey Round I ME...
IOM Swings For the Fences: Proposes New Name and Definition for Chronic Fatigue Syndrome
“It is clear from the evidence compiled by the committee that ME/CFS is a serious, chronic, complex, multisystem disease that frequently and dramatically limits the activities of affected patients.” IOM Report The title of the report “Beyond Myalgic...
Congressional Hearing To Remove Roadblocks to Ampligen Approval at FDA
In talking with experts and reviewing the drugs that have been approved over the past couple of years, we believe it is our right to ask Congress to hold a hearing to review the denial of Ampligen. Below is a draft letter along with the email addresses where the...
CFSAC Finally Becoming Relevant: Holds Special P2P Session Tomorrow
“I can put my fingers on 2,000 well-characterized patients. The work could be done, so why haven’t we done that yet? Because – every single one of the things I have just described – not one of them is receiving federal dollars.”...Lives Interrupted Latest Story
Allyn Archer
Atlanta, United States
Former occupation: Architect, Professor of Architecture
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