“We hope our work has dignified ME/CFS and those affected, while providing expert guidance to the NIH and the broader research community.” – P2P Executive Draft Summary The Pathways to Prevention Program (P2P) is an NIH program begun in 2012 that is tasked with...
The goal of the Pathways to Prevention (P2P) program is to… identify research gaps in a scientific area, identify methodological and scientific weaknesses.., suggest research needs, and move the field forward through an unbiased, evidence-based assessment of a...
The National ME/FM Action Network – that’s Action Network – is on the cusp of winning $5,000 (and getting a chance to win $100,000) in the Aviva Community Fund Contest – or going home (sigh). Why should you support the National ME/FM...
Wouldn’t you just love to “Shake the Stigma”? You know the stigma that says chronic fatigue syndrome is just about fatigue (and mild fatigue at that). That everyone has it from time to time. That it’s a cover up for malingerers. That it’s...
It can be rough advocating for ME/CFS but not just from the feds. They may ignore you or try to sidestep you, but at least they don’t get personal. Some parts of our “community” aren’t so considerate. Jennie Spotila is used to being in the...
“Because of limitations in the evidence base, we did not have high confidence in any of the findings from this review.” The reports from ME/CFS advocates are in. The AHRQ report is “appallingly bad”, “scientifically indefensible and irresponsible”, and is...
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