Call for Congressional Hearing on Treatment For Chronic Fatigue Syndrome (ME/CFS)
(Yesterday we highlighted a Reuter’s article that proposed that the lack of funding and drug development for ME/CFS constituted a ‘market failure’. Today we hit back on this market failure with a call for a congressional hearing that asks why the FDA...
Market Failure! Reuters Journalist Asks Why Chronic Fatigue Syndrome Is Ignored
“Sometimes, unhelpful ideologies get in the way” Edward Hadas, an economic journalist, recently took on the question of why Chronic Fatigue Syndrome (ME/CFS) is funded so poorly in a Reuters piece “Market Failure Can Be A Sign of Fatigue” . He...
Accelerating ME/CFS Change With the #MEAction Network
“Because it’s time we became the strength of our numbers” One thing that’s missing in ME/CFS advocacy are easy and effective ways to do it. We lack the tools other advocacy groups use to communicate, get the word out quickly and easily, and...
NIH – Get Your Act Together! Advocates Press Director Collins to Cancel P2P Workshop
P2P workshops are designed for topics that “are generally not controversial” – P2P website Mary Dimmock and Jennie Spotila have collaborated on a call to request Director Francis Collins to cancel the P2P Workshop. Mary’s background is in the...
Madame Secretary Meet the ME/CFS Community: The $50 Million Dollar Research Funding Campaign Pt. II
ME/CFS ACTION: A new Secretary of Health is about to be confirmed by the U.S. Senate. Sylvia Mathews Burwell is currently the Director of White House Office on Management and Budget, and she is known as effective and numbers oriented. She is also closer to President...Lives Interrupted Latest Story
Allyn Archer
Atlanta, United States
Former occupation: Architect, Professor of Architecture
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