“The problem is that you need a champion in Congress who’s going to go ahead and say, I want money allocated for chronic fatigue syndrome research. That’s the way it gets done. That’s the way HIV got done, that’s the way breast cancer got done, and so...
(Thanks to Jennie Spotila for her advocacy work and letting Health Rising reprint her blog on NIH funding. Jennie presents some good news – an actual increase in funding at the NIH in 2013 – and for good grants by good investigators. It wasn’t a...
The First ‘Death Contract’ Some advocates pointed to the IOM contract to produce a definition for Gulf War Illness IOM as what not to do in ME/CFS. With no Gulf War Illness experts sitting on the panel, and with an unsatisfactory previous IOM Gulf War...
ME AND CFS MORTALITY STUDY RESEARCH PARTICIPANTS NEEDED Were you familiar with someone who had been diagnosed with myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS) and has since passed away? Researchers at DePaul University are looking to investigate...
As things stand right now, one could say that it takes 20 years to get 1 year’s worth of ME/CFS research done. Why? Because the level of funding allocated for ME/CFS research is 20 times lower than that of comparable diseases. See “The Underfinanced ME/CFS Research,...
(Here we go again? Just months after Jennie Spotila uncovered the mess that was the IOM contract, she reports another ME/CFS project is going on behind closed doors. Once again the principals aren’t talking. Ironically the government is starting to spend some...
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