(A)viva ME/CFS! Contest, Your Brain for Science, Making the Invisible Visible, the Definition Question – An Events Blog
There’s alot going on right now; check out the different events in this ‘Events blog’. Aviva ME/CFS! The National ME/FM Action Network’s May 12th Awareness Day for ME/FM submission in the Aviva contest is on the edge of winning $10,000 with the...A Tiger Awakes: ME/CFS Research Community Takes A Stand – Blasts Federal Efforts to Create Definition
ME/CFS Experts Reject Federal Effort to Produce Definition A sleeping tiger just woke up. On the same day the Department of Health and Human Services (DHHS) announced, in the face of strenuous opposition, that they’d entered into a contract with the IOM to...Feds Snub Chronic Fatigue Syndrome Community…Again: Cut Experts Out, Fund Outside Group to Redefine Chronic Fatigue Syndrome
The Feds announced they’ve reversed their decision to stop the contract with the IOM to produce a definition for doctors and are continuing forward……….End of conversation. The ME/CFS experts have been cut out; career bureaucrats are making...The Definition ‘Coup’ – the FEDS Trample CFSAC – Farm Out A Consensus Chronic Fatigue Syndrome Definition To Outside Group: Action Needed
This is wrong on so many levels – Mary Dimmock, advocate and mother of a severely ill son with ME/CFS Thanks to advocates Jennie Spotila, Mary Dimmock and others for jumping on this quickly. The Department of Health and Human Services is all of a sudden in the...ME/CFS Patients Call To Action: Advocates Call for FDA to Hold ‘Real’ FDA Stakeholder’s Meeting
ATTENTION ME/CFS COMMUNITY We the “FDA Team” are asking you to send the message below to the FDA and to listed members of Congress. The recent patient-focused drug development meeting held by the FDA was a start – but only a start. The FDA stated...Lives Interrupted Latest Story
Allyn Archer
Atlanta, United States
Former occupation: Architect, Professor of Architecture
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