Hemispherx released a statement on Monday indicating the FDA had denied their application of Ampligen to treat Chronic Fatigue Syndrome (ME/CFS) because of a lack of ‘substantial’ proof of efficacy and (rather ominously) because they did not have enough...
Ask Secretary Sebelius to start NIH Clinical Trial of Ampligen Contact: Robert Miller 703-554-5575, Courtney Miller 631-834-4681 In day 8 of his hunger strike, Chronic Fatigue Syndrome patient Robert Miller decried the FDA’s decision (announced hours ago) to...
The plight of the chronic fatigue syndrome community was given a sympathetic and moving portrayal in a TV news story in Reno yesterday that featured Bob Miller and Dr. Janet Smith, another Ampligen recipient. The news organization contacted both the FDA and...
Bob Miller has been to the Vice President’s office, he’s had one and one meetings with the Director of the NIH, he’s canvassed politicians on the Hill – he’s thrown everything he can into the fight to get this disorder recognition –...
(Thanks to Anne for providing this eye-opening guest blog on the funding situation facing Chronic Fatigue Syndrome (ME/CFS). Anne has pledged to donate her share of any blog donations to ME/CFS research. Part II of Anne’s series on ME/CFS funding will appear...
Organizers: Robert Miller Patient/Advocate, Cort Johnson (Health Rising) , Billie Moore (Patient Advocate) and Team Contact: 511bobmiller42@gmail.com On December 20th, ME/CFS patients rose to the Challenge and Sent in 750 personal testimonies to the FDA Advisory...
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