Health Rising started charting “ME/CFS moments” when they started popping up with some regularity. ME/CFS moments refer to events that seem to indicate that things are changing for the better for this complex and often neglected disease (as well as its...
Thanks to the 31 people who have posted their stories on Health Rising’s Lives Interrupted project! The Lives Interrupted project seeks to, in dramatic fashion, illustrate the impacts on finances, careers, relationships, and living situations that these...
Eric Topol Decorated researcher, fierce critic, and innovator Eric Topol is not one to hide his light under a bushel. He speaks his mind. Whether he’s right or wrong, with the kind of bona fides Topol brings to the game (he founded the Scripps Research...
Earlier this year I talked with Solve ME’s Chief Executive Officer Oved Amitay and Vice President of Advocacy and Engagement Emily Taylor. I wanted to know what was going on with the oldest U.S. ME organization. Since its founding in 1987, Solve ME (originally...
After many delays and missed promises, the Lives Interrupted Project is here. The goal of the Lives Interrupted project to make crystal clear the costs that diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, POTS, post-treatment Lyme Disease, and Long...
(Brian Vastag comes full circle. A former employee of the NIH, Vastag’s Washington Post letter to NIH Director Francis Collins “I’m disabled. Can NIH spare a few dimes?”, in conjunction with the recently published IOM and NIH Pathways to Prevention...
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