The Education of an Unlikely ME Advocate
Art Mirin seemed hardly the person to lead a movement. A retired mathematician who’d been creating advanced climatological models at the famed Lawrence Livermore National Laboratory in California, Art had never done advocacy before. He had a sick daughter,...
Celebrating ME/CFS Awareness Day – In So Many Different Ways
Tom Hennessy and International Advocacy/Awareness Day Tom Hennessy created International ME/CFS/FM Advocacy day over 30 years ago. A fierce and creative fighter, Tom’s advocacy career was unfortunately curtailed by a tremendously difficult case of ME/CFS. To...
Does Anthony Fauci Finally Get It About Chronic Fatigue Syndrome (ME/CFS)?
Has the Darth Vader of the ME/CFS Movement Changed His Tune? Anthony Fauci has led the National Institute of Allergy and Infectious Diseases (NIAID) at the National Institutes of Health (NIH) for 36 years. The man must be doing something right. Neither HIV/AIDS, SARS,...
Is An Anti-ME/CFS “Cabal” Blocking Funding? + A Bold Request
The Hunt for More Funding For ME/CFS This is the fourth in a series of blogs on advocacy topics as we enter into the prime advocacy period of the year. Study Finds ME/CFS Most Neglected Disease Relative To Its Needs ME/CFS Experts Speak Out in #MEAction’s Long Covid...
Study Finds ME/CFS Most Neglected Disease Relative To Its Needs
Chronic fatigue syndrome (ME/CFS, ME) receives by far the lowest amount of research funding relative to its disease burden from the National Institutes of Health.Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
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