The NIH on the ME/CFS Intramural Study -“Effort Preference”, Exhausted Immune Systems and the Crucial Male/Female Divide
Check out Geoff’s narration The GIST The Full Blog Ah, the famous (infamous?) NIH Intramural ME/CFS study. Interrupted by the pandemic and dramatically downsized, the “Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue...
Unraveled #4: Drs. Ruhoy and Kaufman on Sleep in ME/CFS, FM, long COVID and Allied Diseases
Sleep Series This is the 2nd in a series of (at least) 4 blogs on sleep. Health Rising’s Sleep Series Pt. I – Dr. Bruck Interview – Bronc kicked the series off with an interview of Dr. Bruck – a retired sleep researcher whose son has ME/CFS. Pt. II...
Bad Motor? Are ME/CFS, Fibromyalgia and Long COVID all Motor Cortex Diseases?
THE GIST Main Takeaway – Increased excitability of a part of the brain that regulates movement, pain, and emotions, and may produce fatigue – the motor cortex – links together fibromyalgia, chronic fatigue syndrome (ME/CFS), and long COVID. In each...
The Nath Intramural ME/CFS Study Pt. II: Missed Opportunities, Misreadings and… Success (?)
The second part of a 3-part series of blogs on the “Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome” study looks at who was in the study and how they were selected, how severely the study was truncated by the pandemic (quite...
The Nath ME/CFS Intramural Study Pt. I: “It’s a Brain Disease…”
“One takeaway is It’s a disease that comes from the brain” Nancy Klimas It was one of the most expensive ME/CFS studies ever done. The brainchild of former NIH Director Francis Collins, the unusual study was designed to give the NIH solid footing to...Lives Interrupted Latest Story
Bob Graybosch
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