The OMF’s Severe ME/CFS Big Data Study Remember the Open Medicine Foundation’s Severe ME/CFS Big Data study? Initiated in 2015, it was one of three unusually large and expensive ME/CFS studies (Intramural Study NIH, CDC’s Multisite Study) begun in...
Check out Geoff’s Narrations The GIST The Blog Ten years ago Dr. Peterson called the severely ill the “elephant in the room” that everyone had danced around for years. The elephant in the room got very visible recently. A recent...
(In 2021, Amber outlined the ways we are failing those with very severe ME/CFS in a blog on Health Rising. In this blog, Trude Schei reports on the results of a rare survey that documented the situation they face in Norway.) Background In 2018, the Norwegian ME...
Whitney Dafoe’s painstaking and illuminating characterization of his descent into a severe illness, “Extremely Severe ME/CFS—A Personal Account”, was recently published in an edition of the Healthcare Journal that was devoted to severely ME/CFS...
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