Most people’s idea of fun summer reading probably does not include exploring a person’s experience of chronic fatigue syndrome (ME/CFS). Mine apparently does – I blew through Michael Gallagher’s memoir of ME/CFS “Run Down: An Endurance...
Fifteen years ago I was diagnosed with Fibromyalgia and ME (aka Chronic Fatigue Syndrome), a debilitating condition that includes continual pain and delayed fatigue as its primary symptoms. I often find myself trying to explain to other people what the delayed fatigue...
ME/CFS needs witnesses – people who can stand firm in the face of denial and rejection and tell their story to the world. Each time we responsibly speak the truth to the medical profession, or our families, or our friends, or the NIH or whomever we begin to move...
After 11 years of marinating in chronic illness, my ability to work has all but evaporated and I have entered the world of full time disability for the first time in my life. This time of year would normally mark a return to university life after the summer break....
Jodi Basset’s life changed forever one day at the age of 19 in 1995. Despite having a severe case of M.E. that keep her limited to an hour of work a day at best, Jodi Basset built up the enormous and influential Hummingbirds Foundation website on M.E. A fierce...
I’ve had CFS/ME for 21 years. Nearly 6 years ago I began to recover from a three-year stint of being completely bedridden – the last few months of which I was near death. The first time my doctor saw me he was amazed I was still alive. I was bedridden, emaciated...
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