The ME/CFS and fibromyalgia "Done differently" survey asks what, if you could go back and do it again, you would have done differently regarding doctors, treatments, coping, finances, etc.
Most people with ME/CFS are not scientists but they do have a unique experience with ME/CFS and a burning desire to know what the heck is going on. In that vein the ME/CFS Community provided over a hundred suggestions for the NIH’s massive Clinical Center Study....
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