Community Report: ME/CFS Patients on Advice For the NIH Clinical Center Study
Most people with ME/CFS are not scientists but they do have a unique experience with ME/CFS and a burning desire to know what the heck is going on. In that vein the ME/CFS Community provided over a hundred suggestions for the NIH’s massive Clinical Center Study....
The Tests That Matter: A Chronic Fatigue Syndrome and Fibromyalgia Community Report
The goal of this Community Report is to compile of list of tests that matter. Not necessarily tests which have lead to a diagnosis but tests which have resulted in a treatment approach that has produced results – made you a bit (or a lot) healthier. If a test...
The Chronic Fatigue Syndrome and Fibromyalgia Sleep Survey Results
Unrefreshing Sleep – Not Poor Sleep – Synonymous with ME/CFS and FM Poor sleep has been long held to be synonymous with ME/CFS and FM, and indeed the survey found that fairly poor (40%) and really poor (27%) sleep was common. However, about a third of...
Should You Tell Your Doctor You Have Chronic Fatigue Syndrome or Fibromyalgia?
Do you tell a doctor the truth about your medical history? For most people the answer is a no-brainer: of course you tell them everything about your past. An ME/CFS diagnosis, in particular, though, can come with some baggage – baggage that suggests to some...
The Chronic Fatigue Syndrome and Fibromyalgia Sleep Survey
Several ME/CFS and/or FM experts have said that you can’t fix fibromyalgia or chronic fatigue syndrome without fixing sleep. Dr. Bateman, whose SolveME/CFS presentation on sleep we’re going to cover soon, said she’s tried literally everything she can...Lives Interrupted Latest Story
Bob Graybosch
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Former occupation: Resort General Manager
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