Having any disease is scary, but having chronic fatigue syndrome (ME/CFS) and/or fibromyalgia (FM) often adds a hefty dose of confusion and bewilderment to that fear. Not only are people with ME/CFS and FM typically exhausted and in pain, but problems with short-term...
In June, on our East Coast trip, my partner and I met up with Dan Moricoli in Palm Beach, Florida. I’d been corresponding on and off with Dan for at least ten years. In the late 2000’s, Dan had created the public CFS/Knowledge Center and the private ME/CFS Community...
A real go-getter, Nathalie hiked, biked and even modeled prior to getting the flu from hell. She tried just about everything she could, and a three year course of Valcyte did help, but when she had to stop the Valcyte she was in real trouble. Reaching outside her...
Immunologists aren’t interested. Neurologists, in general, are to be avoided. Endocrinologists can’t be bothered. Except for primary care physicians specializing in chronic fatigue syndrome (ME/CFS), the outlook in the medical field for ME/CFS patients is...
Naturopath and nutritionist, Dr. David Brady’s taken a kind of media driven, rock-star approach to alternative health. He’s got the flashy website; he’s written the book with the catchy title, “The Fibro Fix: Get to the Root of Your...
Experiencing a “crash” or “flare” from too much activity (or whatever) in ME/CFS and fibromyalgia is a given. Most people react by reducing their activities, canceling plans, removing stimuli and going into rest mode. Most of our attention has...
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