The Nath ME/CFS Intramural Study Pt. I: “It’s a Brain Disease…”
“One takeaway is It’s a disease that comes from the brain” Nancy Klimas It was one of the most expensive ME/CFS studies ever done. The brainchild of former NIH Director Francis Collins, the unusual study was designed to give the NIH solid footing to...
“Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany
“Your Blood is Black” “Your blood is black”, said the nurse. “And thick, very thick. We see this with all our Long Covid and ME patients, their blood is very dark and thick. It is not like this with our other patients who have apheresis.” I am now 45...
Could the New STAT Earpiece Bring Instant Credibility to ME/CFS, POTS and Long COVID?
Another “ME/CFS moment” – a sign that things are looking up for ME/CFS and related diseases has occurred. It’s the emergence of the STAT earpiece and it just goes to show that we never know what things are being worked on right now that might...
The Sheffield Talk on Fibromyalgia
(My apologies for those who got two email blasts. I’m not sure how that happened.) In this hour plus Q&A with Sheffield ME and Fibromyalgia Group I got to blab about hot topics in fibromyalgia research, hope for future treatments, how chronic fatigue...
Ivabradine – Could a “Wonder Drug” For POTS Work in ME/CFS?
Ivabradine appears to work quite well in POTS – but should we stop there? Ivabradine was approved for use in the European Union in 2005, but it’s pretty new to the scene in the U.S. It was FDA approved in only 2015. That means it doesn’t have much...Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
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