ME/CFS Patients Call To Action: Advocates Call for FDA to Hold ‘Real’ FDA Stakeholder’s Meeting
ATTENTION ME/CFS COMMUNITY We the “FDA Team” are asking you to send the message below to the FDA and to listed members of Congress. The recent patient-focused drug development meeting held by the FDA was a start – but only a start. The FDA stated...
Patients Give FDA the Scoop on ME/CFS in First Day of FDA Stakeholder Meeting
“There’s an unmet medical need right here and there has been for a long time” Bob Miller The first day of the FDA Stakeholders Meeting was like an patient/FDA roundtable session focusing on what symptoms are worst and what treatments worked best....
FDA Scientific Stakeholder Workshop Needs Your Input
Dear Patients, Patient’s Loved Ones and Friends, Since I ended my hunger strike, I have learned that the FDA has sent invitations for the ME/CFS scientific stakeholder workshop scheduled for April 25-26th. The FDA hasn’t disclosed who it is inviting, and did not...Ending My Hunger Strike with Accomplishment
Dear Friends, We, as a community, accomplished some very important things during the last few weeks, and so I am ending my hunger strike tonight. I am committed to working with our federal health agencies to bring a stronger focus and program to bear on ME/CFS for all...Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
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