The Washington Post is running an excellent story, “Patients push limits for clues to chronic fatigue syndrome”, on ME/CFS and the NIH’s ME/CFS intramural study. The featured story – of Zach Ault, a father, who while training for a...
A FOIA and Jennie Spotila’s analyses indicate the NIH funding for ME/CFS is heading in the wrong direction. Into the Dark Side Researchers abandoning the NIH? Significant drops in funding? Who could have imagined it would have gone this way four years ago when...
With regards to research funding, infrastructure development, creativity and sheer energy - there's no doubt that the smaller ME/CFS community is far ahead of the much larger fibromyalgia community. The question is why and what can be done to unleash the FM community's vast resources.
The HEAL Initiative (Helping End Addiction Long Term) is one of the rare NIH initiatives that presents real possibilities for a long neglected population. It took an act of Congress – which gave the NIH $500 million and specifically directed them to use it attack...
A Freedom of Information Act (FOIA) reveals that during the three grant review panels from July 2017 to April 2018, chronic fatigue syndrome (ME/CFS) researchers applied for a total of 12 grants. It was the lowest number of grant applications to the panel dating back...
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