Most people with ME/CFS are not scientists but they do have a unique experience with ME/CFS and a burning desire to know what the heck is going on. In that vein the ME/CFS Community provided over a hundred suggestions for the NIH’s massive Clinical Center Study....
Dr. Avindra Nath laid out a three pronged strategy to develop treatments for ME/CFS at the CDC’s Grand Rounds meeting today. The first step is the Clinical Center Study soon to begin. The second step will validate the biomarkers found in the first study. The...
Thus far the NIH’s big Clinical Center study is looking good. They’ve cleared up the definition problem and are focused on post-exertional malaise. This is a different kind of study, however, than the NIH usually does. It’s an exploratory study. ...
A rough sketch of the NIH’s Clinical Center study for chronic fatigue syndrome (ME/CFS) has been posted. The good news about the study is that when Francis Collins said they were serious about ME/CFS he apparently wasn’t kidding. This looks to be the most...
News, People and Organizations Biggest Gut Punches to the Federal Neglect of ME/CFS – Two federally funded reports land a gut punch to the NIH’s historical neglect of chronic fatigue syndrome (ME/CFS). They both call for urgent increases in support....
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