Lives Interrupted: the Hidden Costs of Having a Neglected Illness
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Lives Interrupted seeks to illuminate the economic and other costs of having diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, postural orthostatic tachycardia syndrome (POTS), post-treatment Lyme disease, and long COVID. These diseases affect millions, typically receive little research funding, and, as a consequence have few good treatments available. Find out more about Lives Interrupted here.
All Stories
| Name: Bob Graybosch | Years Ill: 12 |
| Location: Lahaina, United States | |
| Former Occupation: Resort General Manager | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 30 |
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Total Projected Economic Losses For Years Not Worked:
$1,261,443 |
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Story: From about the age of 8 I worked my butt off to get ahead. My family was relatively poor and I kn… |
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| Name: Allyn Archer | Years Ill: 20 |
| Location: Atlanta, United States | |
| Former Occupation: Architect, Professor of Architecture | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 10 |
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Total Projected Economic Losses For Years Not Worked:
$2,768,291 |
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Story: In some ways, my life has resembled a work of fiction. Descended from seven generations of East … |
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| Name: JudyH | Years Ill: |
| Location: Atascadero, United States | |
| Former Occupation: Student | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 50 |
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Story: My non-miraculous, extremely slow, non-recovered, successful life, so far I first got CFS … |
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| Name: Georgie Coghlan | Years Ill: 22 |
| Location: Byron Bay, Australia | |
| Former Occupation: Interior Designer | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 60 |
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Total Projected Economic Losses For Years Not Worked:
A$2,210,234 |
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Story: I remember being in my late teens and always having a sore back, shoulders, neck and legs. I tho… |
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| Name: Corey | Years Ill: 13 |
| Location: West Bend, United States | |
| Former Occupation: Electrical Engineer - Wireless Design | |
| Former Activity Level (0-100): 90 | Current Activity Level (0-100): 50 |
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Total Projected Economic Losses For Years Not Worked:
$893,187 |
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Story: I came down with the Swine Flu and never recovered. It set off an inflammatory cascade in my bod… |
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| Name: Ani | Years Ill: 15 |
| Location: Canberra, Australia | |
| Former Occupation: I.T. apprentice | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 30 |
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Total Projected Economic Losses For Years Not Worked:
A$967,481 |
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Story: I was in a car accident in 2008 at age 25. Prior to the accident I had a promising IT career an… |
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Lives Interrupted Latest Story
Bob Graybosch
Lahaina, United States
Former occupation: Resort General Manager
$1,261,443
Lives Interrupted Sponsor
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
