Lives Interrupted: the Hidden Costs of Having a Neglected Illness
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Lives Interrupted seeks to illuminate the economic and other costs of having diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, postural orthostatic tachycardia syndrome (POTS), post-treatment Lyme disease, and long COVID. These diseases affect millions, typically receive little research funding, and, as a consequence have few good treatments available. Find out more about Lives Interrupted here.
All Stories
| Name: Steph | Years Ill: |
| Location: Indianapolis, United States | |
| Former Occupation: Respiratory Therapist | |
| Current Occupation: Respiratory Therapist | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 50 |
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Story: I had my daughter in 2010. My life changed immensely. I had this beautiful human to be responsibl… |
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| Name: Ann | Years Ill: 6 |
| Location: St. Louis, United States | |
| Former Occupation: Chemo and Infusion Nurse | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 40 |
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Total Projected Economic Losses For Years Not Worked:
$216,464 |
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Story: I became sick with ME 4 months prior to a 5-day backcountry hike of the Chilkoot Trail in Alaska.… |
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| Name: Anna Marie | Years Ill: 21 |
| Location: Huddersfield, England, UK | |
| Former Occupation: Architectural technician | |
| Current Occupation: Ventilation design engineer | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 70 |
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Total Projected Economic Losses For Years Not Worked:
£340,896 |
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Story: About 25 years ago (in my mid 20s), I started getting unexplained fatigue and then age 30 I got "… |
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Health Rising’s 2024 BIG (little) End of the Year Donation Drive
Lives Interrupted Latest Story
Allyn Archer
Atlanta, United States
Former occupation: Architect, Professor of Architecture
$2,768,291
Lives Interrupted Sponsor
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
