Lives Interrupted: the Hidden Costs of Having a Neglected Illness
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Lives Interrupted seeks to illuminate the economic and other costs of having diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, postural orthostatic tachycardia syndrome (POTS), post-treatment Lyme disease, and long COVID. These diseases affect millions, typically receive little research funding, and, as a consequence have few good treatments available. Find out more about Lives Interrupted here.
All Stories
| Name: Stéphanie | Years Ill: 8 |
| Location: Saskatoon, Canada | |
| Former Occupation: Assistant professor of physiotherapy | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 40 |
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Total Projected Economic Losses For Years Not Worked:
CA $465,720 |
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Story: My story is simple. My CFS/ME started after my best friend was murdered by her ex-boyfriend and I… |
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| Name: Ishtar | Years Ill: 12 |
| Location: Edinburgh, Scotland, UK | |
| Former Occupation: Psychologist & Dance artist | |
| Current Occupation: Psychologist in private practice, dance artist | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 70 |
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Story: Prior to becoming ill, I had a rich and full life. I was part of a pain management team, I ran m… |
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| Name: Brie | Years Ill: 32 |
| Location: Bend, United States | |
| Former Occupation: Counselor | |
| Former Activity Level (0-100): 100 | Current Activity Level (0-100): 40 |
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Total Projected Economic Losses For Years Not Worked:
$2,051,715 |
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Story: I was a Nationally awarded swimmer, First chair musician, and worked hard in academics and my car… |
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| Name: LauraB | Years Ill: 6 |
| Location: Rock Stream, United States | |
| Former Occupation: RN | |
| Current Occupation: RN | |
| Former Activity Level (0-100): 90 | Current Activity Level (0-100): 40 |
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Story: On the way home from work, I saw a cat hit by a car on a busy roadway. I pulled over, ran out li… |
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Health Rising’s 2024 BIG (little) End of the Year Donation Drive
Lives Interrupted Latest Story
Allyn Archer
Atlanta, United States
Former occupation: Architect, Professor of Architecture
$2,768,291
Lives Interrupted Sponsor
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
