Lives Interrupted: the Hidden Costs of Having a Neglected Illness
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Lives Interrupted seeks to illuminate the economic and other costs of having diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, postural orthostatic tachycardia syndrome (POTS), post-treatment Lyme disease, and long COVID. These diseases affect millions, typically receive little research funding, and, as a consequence have few good treatments available. Find out more about Lives Interrupted here.
All Stories
Name: Christyne Bliton | Years Ill: 17 |
Location: East Lansing, United States | |
Former Occupation: Bioengineer | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 20 |
Total Projected Economic Losses For Years Not Worked:
$1,631,171 |
|
Story: I was managing a national bioinformatics project at University of Michigan when I got sick with a… |
Name: Drew | Years Ill: 5 |
Location: Los Angeles, United States | |
Former Occupation: team director at early stage tech startup | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 40 |
Total Projected Economic Losses For Years Not Worked:
$161,181 |
|
Story: I was working to get some diagnosed digestive issues under control (SIBO- symptoms were nausea, c… |
Name: Dave | Years Ill: 25 |
Location: Milan, United States | |
Former Occupation: Teacher | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 20 |
Total Projected Economic Losses For Years Not Worked:
$660,040 |
|
Story: By the way, currently, I am 1/2 the man I used to be -- 260lbs when I got sick, and now down to 1… |
Name: Anna | Years Ill: 6 |
Location: Saint Paul, United States | |
Former Occupation: Physical Therapist Assistant | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 20 |
Total Projected Economic Losses For Years Not Worked:
$122,116 |
|
Story: I became ill right as I graduated from a Physical Therapy Assistant program (2017). I remember th… |
Name: Elizabeth | Years Ill: 3 |
Location: Wolfville, Canada | |
Former Occupation: Retired | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 30 |
Story: In early March 2020 I became ill but for a while continued with winter hiking, thinking this was … |
Name: Lynn R | Years Ill: 17 |
Location: Vacaville, United States | |
Former Occupation: Registered Nurse | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 30 |
Total Projected Economic Losses For Years Not Worked:
$1,837,602 |
Name: Amy S. | Years Ill: 3 |
Location: Cortlandt Manor, United States | |
Former Occupation: Chief Program Officer | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 20 |
Total Projected Economic Losses For Years Not Worked:
$171,707 |
|
Story: I became symptomatic with COVID-19 on March 25, 2020; it started with shortness of breath, and fo… |
Name: Suzie B | Years Ill: 4 |
Location: Vancouver, Canada | |
Former Occupation: Film Production/Location Management | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 20 |
Story: I developed ME after my first chemotherapy, immunotherapy treatment and radiotherapy for stage 4 … |
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Lives Interrupted
Lives Interrupted Latest Story
Allyn Archer
Atlanta, United States
Former occupation: Architect, Professor of Architecture
Total Economic Losses:
$2,768,291
Lives Interrupted Stats
Years of Work Lost: 326
Average Total Economic Losses:
$872,884
Total Economic Losses:
$27,059,391
Lives Interrupted Sponsor
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.