- Source of the Story
- Provided to Health Rising
- Resource Type
- Book
- Name
- Jason Boyce
- Diagnosis
-
- Chronic Fatigue Syndrome
- Disease Course Over Time
- I Got flu/EBV (or XMRV) early 2000’s and was sick for 3 weeks, with fever, cough, etc. I never felt quite the same after the virus and my health steadily declined until I was diagnosed with ME/CFS. The decline was slow but steady.
- Type of Onset
- acute flu-like
- Approximate Date of Illness Began
- 2006-2010
- Duration
- 16-20 years
- Functionality at it's Worst
- Somewhat homebound
- Symptoms
- Crushing fatigue, post-exertional malaise, muscle and joint pain, impaired cognitive functioning, headaches, depression
- Treatments That Made A Big Difference
- Hydrogen peroxide IVs, nebulized glutathione
- Treatments That Helped
- Alpha stim therapy helped with calmness but not with sleep, PEMF therapy combined with red light therapy, exercise with oxygen therapy (EWOT), high-dose vitamin D, ketamine IVs for depression, daily meditation, Sermorelin for sleep, cervical collar, intermittent fasting
- Treatments That Had No Effect
- heat therapy (sauna)
- Treatments That Made You Worse
- Ashwagandha
- Present State of Health
-
- Almost recovered - Able to lead norrmal lifestyle
- Leads near normal life but cannot exercise vigorously
- Story
-
Jason's Story - I was tired most of the time, but with some good days. On the good days, I would try to exercise and then crashed badly the next day. The crashes lasted longer and longer until any type of exercise left me bedbound for several days. I learnt how to carefully manage my energy levels, which meant no exercise at all and very short walks. Inevitably, I became depressed, frustrated by the fact that I couldn’t exercise or even play with my kids for any length of time.
I also got frustrated with the medical community, with primary care doctors completely misunderstanding the disease, prescribing me antidepressants and urging me to exercise more. I sought the advice of ME/CFS specialist that opened my eyes to the range of therapies that are available. So I decided to experiment on myself and record the results in a journal for each type of therapy I tried.
Over the months and years that ensued, I realized that I had recorded a large amount of valuable information regarding various types of therapies, vitamins and pharmaceuticals, specifically what worked and what didn’t work. I then decided to collate the information and write a book in order to help others navigate the myriad of therapies and pinpoint the things that actually work.
I have called the book "Chronic Fatigue Gone! A Recovery Plan for Long COVID. ME/CFS, Lyme & Fibromyalgia (and for anyone who wants more energy)."
- Words of Advice
- In conclusion, these therapies combined help me live a relatively normal life (he can't run but can play golf, work, and play with his kids ). It's costly, time-consuming, and takes some fortitude to keep working and using these therapies. Sometimes I lapse, miss a few days, then count the cost. So I brush myself off and get back on the therapy horse, so to speak. There are few things in life that are easy, and a chronic illness is certainly not one of them! But with a bit of determination and fortitude, it is possible.
- Suggested Resources
-
- CFS Unraveled - Get Well by Treating the Cause Not Just the Symptoms of CFS, Fibromyalgia, POTS and Related Syndromes by Dan Neuffer.
- The Healer Within - My Recovery from Chronic Lyme, CFS and Autoimmune Disease by Holly Chameli
- Diagnosis and Treatment of CFS and ME - It’s Mitochondria, not Hypochondria by Dr. Sarah Myhill
- CHRONIC - The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again - by Steven Philips, MD, and Dana Parish with Kristin Loberg.
- Rapid Virus Recovery - No Need to Live in Fear! by Thomas E. Levy MD, JD (hydrogen peroxide therapy via nebulization)
- The One Minute Cure - The Secret to Healing Virtually All Diseases by Madison Cavanaugh (hydrogen peroxide therapy)
- The Glutathione Revolution, Fight Disease, Slow Aging and Increase Energy with the Master Antioxidant by Nayan Patel, Pharm D
- The Optimal Dose - Restore Your Health With the Power of Vitamin D3 by Judson Somerville, MD
- The Oxygen Revolution (Third Edition), Hyperbaric Oxygen Therapy:
- Breakthrough Gene Therapy for Traumatic Brain Injury and Other Disorders by Paul G Harch, MD, and Virginia McCullough
- PEMF - The 5th Element of Health - Learn Why Pulsed Electromagnetic Field (PEMF) Therapy Supercharges Your Health Like Nothing Else! by Bryant A. Meyers
- Red Light Therapy - Miracle Medicine by Mark Sloan
- Vagus Nerve and Polyvagal Theory Exposed by Sharon Copeland
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