- Source of the Story
- Provided to Health Rising
- Resource Type
- Patient Story
- Name
- Stephanie
- Diagnosis
-
- Chronic Fatigue Syndrome
- Fibromyalgia
- Irritable Bowel Syndrome
- Ehlers Danlos Syndrome
- Other diagnoses
- severe degenerative disc disease, chronic pain response syndrome, PTSD
- Disease Course Over Time
-
Stephanie was fine until one day at age 22 she turned to pick up something in the shower and experienced a lightning pain in her back. She had no idea what was ahead of her. An examination indicated she had the jagged and brittle spinal column of an 80-year old woman: unbeknownst to her she had severe degenerative disc disease.
Multiple back surgeries and many diagnoses later including a spinal fusion in her neck left Stephanie in enormous pain and unable work. She was left with the option of a pain pump or ketamine infusions.
- Type of Onset
- gradual non-flu like
- Approximate Date of Illness Began
- 1996-2000
- Duration
- 11-15 years
- Functionality at it's Worst
- Mostly bedbound
- Symptoms
- extreme pain, fatigue and depression (after a violent incident)
- Positive Test Results
- severe degenerative disc disease
- Treatments That Made A Big Difference
- Ketamine infusion
- Treatments That Had No Effect
- Stephanie tried many, MANY drugs”, including large doses of opioids, steroid injections, trigger point injections, physical therapy, physical exams, acupuncture, massage therapy, water therapy, discograms. None brought her significant relief.
- Present State of Health
-
- Leads near normal life but cannot exercise vigorously
- Words of Advice
- "Ketamine has saved my life"
[fright]
[/fright]Stephanie gets 800 mgs of ketamine infused for five hours a day for two days in a row. Propofol helps her sleep through the infusion cycle. She feels tired and out of sorts for about 24 hours after the infusion but her pain goes from an 8-9 every day to a 2-3 for 3-4 weeks. Then she does the infusion again.
Stephanie is not well and she needs to get Ketamine infusions regularly but she said ketamine has saved her life and has been “fantastic for depression”.
Ketamine's effectiveness in some patients with treatment resistant pain and/or depression has sparked a search for ketamine derivatives that do not require infusions. Some drugs are in clinical trials now.
Read more Ketamine, fibromyalgia and depression below
Stephanie is not well and she needs to get Ketamine infusions regularly but she said ketamine has saved her life and has been “fantastic for depression”.
Ketamine's effectiveness in some patients with treatment resistant pain and/or depression has sparked a search for ketamine derivatives that do not require infusions. Some drugs are in clinical trials now.
Read more Ketamine, fibromyalgia and depression below
- The Ketamine Question in Fibromyalgia and Chronic Fatigue Syndrome
- Ketamine: the Future of Depression Treatment?
- Ketamine Advocacy Network – maintains a list of doctors using ketamine