I’m looking for a short (no more than 20 minutes) exercise program, preferably a video, that would be safe for ME/CFS. Can anyone recommend a program, maybe Pilates, yoga, or tai chi? I walk a slow mile a day but at 73 am losing muscle and feeling weak. I’d be grateful for any suggestions.
Hi everyone, I'm Rachel, a long-time reader and first-time poster here. I developed Long COVID / chronic fatigue in December 2021 and went into remission in mid-2022, which I wrote about in this Health Rising article. I'm now 9 weeks pregnant, and the pregnancy has triggered another round of...
hi
I have been off work for 2 months, it started with blood in the urine and feeling like I had flu, a urine sample showed Acinetobacter bunamii and I had the treatment for it ( only sensitive to ciprofloxacin) but I have not improved sufficiently to return to work.
I have shaking symptom in...
How many of you have had your exocrine pancreas function tested to check for any level of exocrine pancreatic insufficiency (a.k.a EPI)?
EPI happens when your pancreas no longer produces and/or delivers enough pancreatic enzymes in order to break down fats, protein and carbohydrates properly...
This website is from the clinic that Dr. Lapp left behind after he retired. It's in driving distance for me, but I will still have to stay in a hotel. So I'm thinking I should ask around and see what people think of it. I'll add a survey so if you're having a low energy day, you can just...
Our stories leading up to ME/CFS and while battling it have some remarkable similarities. Yet due to subcategories of this illness, many of us fail to respond to treatments that work for others, and in fact some of us may get worse. The science behind ME/CFS is indeed still in it's infancy...
I was sat here thinking what I can actually do to help others. I've donated blood once before but that was before M.E/C.F.S.
Does anyone know if I can still give blood?
Also before M.E/C.F.S I had glandular fever. Does that mean I should never have given blood? I was never tested to see if...
ME Research UK has taken the decision to withdraw its membership from the UK CFS/ME Research Collaborative with immediate effect.
http://www.meresearch.org.uk/news/me-research-uk-and-the-uk-mecfs-research-collaborative/
Questions will be taken during the show at 1-800-552-8502 or via Twitter @rrrpublicradio.
LIVE STREAM at TOP of Page
The daily schedule. (Looks like it will be an All Things Considered piece.)
I have been ill with ME/CFS for 8 1/2 years. In the last year and a half I have had blood pressure issues - both too high and too low. I just turned 65 (yikes!) and need to get some other "normal" aging issues addressed. I had a dermatologist treatment this week (non invasive) and my blood...
Hello! I'm interested in tracking my symptoms better and would love to know which wearables people with ME/CFS/Fibro are using. I'm interested in tracking heart rate, sleep quality, and activity levels (steps, stairs, etc.). I know Stanford did a study a while back comparing different wearables...
I posted this on an old POTS thread yesterday, but I thought I'd start it as new one today for more eyes to see. Would love thoughts!
I know the healthrising and phoenixrising communities and researchers have examined acetylcholine before. I wanted to take the concept one step further in...
Shared post from Millions Missing Canada
INTRODUCING NEWLY RELEASED FILM FOOTAGE
and Fundraising Drive for Remaining Costs
'Message of Hope'
Hear Specialist Dr. Alison Bested share her 'Message of Hope' to those of us living and suffering daily with Myalgic Encephalomyelitis as she's...
Shared from Millions Missing Canada.
Finally - A Canadian press article outlining our fight for health care and highlighting our Toronto 'Sick-In'. Written by Brock Weir from The Auroran newspaper, our newest vocal supporter in the ME community.
"Several people living with ME/CFS gathered in...
From your kidneys, ureters, bladder, and beyond- What's ME/CFS doing to your ability to pee?
If you're having urinary symptoms, feel free to answer what you're comfortable with:
* New with or after ME/CFS onset?
* How troublesome or severe?
* How often?
* Seeking treatment? Who- PCP/GP...
First, at least for me, there was chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM). Then I learned about irritable bowel syndrome (IBS), then POTS and in the last five years Ehler’s-Danlos (EDS) and Mast Cell Activation Syndrome (MCAS).
The more researchers looked the more they seemed...
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