Resource Hypocapnic Cerebral Hypoperfusion: A New Kind of Orthostatic Intolerance

[Cort]

Cort submitted a new resource:

Hypocapnic Cerebral Hypoperfusion: A New Kind of Orthostatic Intolerance - Have trouble standing but don't test positive for POT / orthostatic hypotension? You might have HCH

[fright]View attachment 3081[/fright]Dr. Peter Novak MD, PhD, of Brigham and Women's Hospital at Harvard University uncovers a new kind of orthostatic intolerance which is not characterized by high heart rates (POTS) or low blood pressure (neurally mediated hypotension (NMH) but by low carbon dioxide levels and low blood flows to the brain.

Find out more in this Health Rising article:

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[Merida]

Cort submitted a new resource:

Hypocapnic Cerebral Hypoperfusion: A New Kind of Orthostatic Intolerance - Have trouble standing but don't test positive for POT / orthostatic hypotension? You might have HCH



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Thank you, Cort!!! This is valuable information. Interestingly, my daughter ( a researcher) just interviewed at Brigham and Women’s - looks like she will be leaving her west coast Univ. position and going there. Has a large NIH Grant - using brain scans to look at women with chronic pelvic pain. Hmmm.

 

[Katherine Autry]

You did not get a lot of comments on this but I for one identify.....one of my symptoms is not exactly difficulty breathing, but more like impossible to breath deeply (like i used to in yoga for example). And when walking around/being active, this inability to breath deeply gets very uncomfortable....its almost a natural outcome of exertion to breathe more deeply so having difficulty doing that naturally does not feel good.

 

[Cort]

Thank you, Cort!!! This is valuable information. Interestingly, my daughter ( a researcher) just interviewed at Brigham and Women’s - looks like she will be leaving her west coast Univ. position and going there. Has a large NIH Grant - using brain scans to look at women with chronic pelvic pain. Hmmm.

Nice! Very well may be overlaps between CPP and fibromyalgia and ME/CFS. Should be interesting! Good for her.

 

[Cort]

You did not get a lot of comments on this but I for one identify.....one of my symptoms is not exactly difficulty breathing, but more like impossible to breath deeply (like i used to in yoga for example). And when walking around/being active, this inability to breath deeply gets very uncomfortable....its almost a natural outcome of exertion to breathe more deeply so having difficulty doing that naturally does not feel good.

I too for years have had this difficulty in breathing deeply. It's like my body doesn't want to....

 

[SarahTee]

Just noticed a 2021 article by Dr Peter Rowe looking at cerebral blood flow:

Cerebral blood flow remains reduced after tilt testing in myalgic encephalomyelitis/chronic fatigue syndrome patients - PubMed

The finding that orthostatic stress elicits a post-stress cerebral blood flow reduction and that disease severity greatly influences the cerebral blood flow reduction may have implications on the advice of energy management after a stressor and on the advice of lying down after a stressor in...

pubmed.ncbi.nlm.nih.gov

Dysautonomia International recently gave out five grants to autonomic labs in Canada and the US for transcranial Doppler equipment to be used during tilt table testing. So that makes at least six places, including Dr Novak’s lab, where this can be tested and researched.

 

[Cort]

Just noticed a 2021 article by Dr Peter Rowe looking at cerebral blood flow:

Cerebral blood flow remains reduced after tilt testing in myalgic encephalomyelitis/chronic fatigue syndrome patients - PubMed

The finding that orthostatic stress elicits a post-stress cerebral blood flow reduction and that disease severity greatly influences the cerebral blood flow reduction may have implications on the advice of energy management after a stressor and on the advice of lying down after a stressor in...

pubmed.ncbi.nlm.nih.gov

Dysautonomia International recently gave out five grants to autonomic labs in Canada and the US for transcranial Doppler equipment to be used during tilt table testing. So that makes at least six places, including Dr Novak’s lab, where this can be tested and researched.

Very nice! I didn't know that. That is very good to hear!

 

[SarahTee]

Just noticed a 2021 article by Dr Peter Rowe looking at cerebral blood flow:

Cerebral blood flow remains reduced after tilt testing in myalgic encephalomyelitis/chronic fatigue syndrome patients - PubMed

The finding that orthostatic stress elicits a post-stress cerebral blood flow reduction and that disease severity greatly influences the cerebral blood flow reduction may have implications on the advice of energy management after a stressor and on the advice of lying down after a stressor in...

pubmed.ncbi.nlm.nih.gov

Dysautonomia International recently gave out five grants to autonomic labs in Canada and the US for transcranial Doppler equipment to be used during tilt table testing. So that makes at least six places, including Dr Novak’s lab, where this can be tested and researched.

Oh, and Dr Rowe presumably has access to TCD at Johns Hopkins. So that’s seven places in the US and Canada.

I have found out that the Austin Hospital in Melbourne, Australia also has TCD. Coincidentally one of Australia’s few dysautonomia specialists, Chris O’Callaghan, heads a unit there. I hope he is getting access to this equipment.