Community Report: ME/CFS Patients on Advice For the NIH Clinical Center Study

Community Report: ME/CFS Patients on Advice For the NIH Clinical Center Study

Overview Reviews (5) Discussion
Latest Most helpful Rating
Patty May
The suggestions for investigating so many different processes should give the NIH a clue about the complexities of this disease. We are not going to be easily placated with an attempt to tell the ME/CFS community that it's "all in your head" or it's our "sickness behavior" causing our illness!
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Nina
Well done. I need to get this list to my primary who feels he has license to ignore the disease altogether.
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K
Astounding client input
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Stella Heath
This seems to cover all the complexity of these syndromes. Itis to be hoped the NIH will take it on board
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M
So many excellent questions....let's hope for the answers to some!
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