Antivirals

[Who Me?]

@sdsu I'd rather go down fighting then sitting around feeling like a victim.

Waiting 10 years for something that may not help is not an option.

 

[Mandy]

Hello me/cfs peeps

I just joined this forum today.
I've been diagnosed with RA, fibro, and me/cfs. I have been unable to find any doc that will even do virus testing on me. I had a follow up appt today with my pcp. I brought him Dr. Lerner's protocol - printed and easy to read. My doc pretty much said it was all a crock - and nobody really knows how to treat me/cfs. Blurg!
How did you all find a doc to test and treat you with antivirals?

Thanks!

 

[Who Me?]

Hey sorry your doc is such a jerk. I have never had a doc refuse to run labs. I started with a new Pcp last year and he runs pretty much whatever I ask for no questions asked. I got very lucky.

At the very least I would look for another Pcp who is more open and will support you in case you end up with someone outside your plan to treat you.


That's what I do. If he's this negative now it's not going to get better imo.

I googled and found my NP. Where are you? Someone here may be able to head you in the right direction.

 

[Mandy]

Wow. Thanks for the insight. I guess I've just found a couple super opinionated/unhelpful doctors!
I found an integrative clinic in my area that I'm going to call on Monday. Fingers crossed the doc there will take me as a patient.

I live in the Seattle area. You'd think it wouldn't be so hard to find a me/cfs doc here!

 

[Who Me?]

@Mandy Good luck with that. When I found my doc I Googled my city and then all sorts of crazy options, integrative, functional medicine, and I think I hit her when I did methylation. I'm in So Cal and not all that many docs here and I don't drive anymore so I'm really limited.

Most of my PCP's through my insurance at the very least ran labs (my previous one finally got fed up but that was mostly because of her ego and my finding the NP).

I think I remember about someone in Seattle. Can you travel at all and can you pay out of pocket? If so the Open Medicine Institute in Northern Cal might be a good place.
I'm gonna look for Seattle.

Note: I have no idea about any of these doctors. Do your homework.

(Moderator note: The below data came from a post on Phoenix Rising by CFS_for_19_years.)

Ok I found this place Harborview Chronic Fatigue Clinic or UW now. Dr. Marty Ross.There are several docs there, comments said some can be arrogant so I think it's finding a good match.

Tahoma seems to be popular

http://www.drbuscher.net/index.php

http://ralphgolanmd.com

r. Brenden Cochran ND​

http://www.interactivehealthclinic.com/about-interactive-health-services/doctor-brenden-cochran​

​

Dr. Jeff Harris, N.D. ​

http://jeffharrisnd.com/index.php?option=com_frontpage&Itemid=1​

​

Dr. Kimberly Iller, ND, LAc​

http://functionalmedicinenw.com/Home.html​

(EcoClimber also mentioned her in an earlier post)​

​

Dr. Dan Labriola, ND​

http://www.nwnaturalhealth.com/providers.html​

​

Dr. Paul Anderson, ND​

http://www.amsa1.com/staff.html​

​

Dr. Lorina Shinsato, ND, LAc​

http://www.primavitafamilymedicine.com/​

​

Dr. Susan L. Marra, ND​

http://drsusanmarra.com/​

(already mentioned by Daffodil)​

​

Dr. Michelle Turcotte, ND, NMD​

http://www.connectedwellnesscenter.com/​

​

Dr. Miroslawa Witalis, ND​

http://www.drwitalis.com/index.html​

​

I don't want to leave out this clinic:​

http://tahomaclinicnorthseattle.com/ (North Seattle)​

​

The original Tahoma Clinic was founded by Jonathan V. Wright, MD in 1973 and now has three locations. There are three naturopaths at the above location.​

Here are the other two locations with doctor info:​

​

http://www.tahomaclinic.com/staff (Tukwila, also known as Renton)​

http://tahomaclinicredmond.com/about-us (Redmond)​

​

​

 

[Mandy]

In bed - reading up on all the links you posted now. You are a frickin rockstar!
Thank you!

 

[Carolrose]

@Mandy Good luck with that. When I found my doc I Googled my city and then all sorts of crazy options, integrative, functional medicine, and I think I hit her when I did methylation. I'm in So Cal and not all that many docs here and I don't drive anymore so I'm really limited.

Most of my PCP's through my insurance at the very least ran labs (my previous one finally got fed up but that was mostly because of her ego and my finding the NP).

I think I remember about someone in Seattle. Can you travel at all and can you pay out of pocket? If so the Open Medicine Institute in Northern Cal might be a good place.
I'm gonna look for Seattle.

Note: I have no idea about any of these doctors. Do your homework

Ok I found this place Harborview Chronic Fatigue Clinic or UW now. Dr. Marty Ross.There are several docs there, comments said some can be arrogant so I think it's finding a good match.

Tahoma seems to be popular


http://www.drbuscher.net/index.php

http://ralphgolanmd.com

r. Brenden Cochran ND
http://www.interactivehealthclinic.com/about-interactive-health-services/doctor-brenden-cochran

Dr. Jeff Harris, N.D.
http://jeffharrisnd.com/index.php?option=com_frontpage&Itemid=1

Dr. Kimberly Iller, ND, LAc
http://functionalmedicinenw.com/Home.html
(EcoClimber also mentioned her in an earlier post)

Dr. Dan Labriola, ND
http://www.nwnaturalhealth.com/providers.html

Dr. Paul Anderson, ND
http://www.amsa1.com/staff.html

Dr. Lorina Shinsato, ND, LAc
http://www.primavitafamilymedicine.com/

Dr. Susan L. Marra, ND
http://drsusanmarra.com/
(already mentioned by Daffodil)

Dr. Michelle Turcotte, ND, NMD
http://www.connectedwellnesscenter.com/

Dr. Miroslawa Witalis, ND
http://www.drwitalis.com/index.html

I don't want to leave out this clinic:
http://tahomaclinicnorthseattle.com/ (North Seattle)
The original Tahoma Clinic was founded by Jonathan V. Wright, MD in 1973 and now has three locations. There are three naturopaths at the above location.
Here are the other two locations with doctor info:
http://www.tahomaclinic.com/staff (Tukwila, also known as Renton)
http://tahomaclinicredmond.com/about-us (Redmond)

​

Hi Minx, you state you live in SoCal too. Which doctors have you found you work well with. I recently did a two month viral protocol that really seems to help. I am not sure I will be able to continue this or not. Will learn more in two week appointment.

 

[Who Me?]

@Carolrose I'm seeing a naturopath in Orange County who has no problem rx'ing antivirals (except probably Valcyte). I've been on famvir for about a year.

She's supportive of all the crazy stuff I try and we have a good partnership. She has no ego, just wants me to feel better. I think she is lacking When it comes to our sleep issues, fortunately my pcp is good with that.

Send me a PM and tell me where you are. I know of a few docs.

 

[Carolrose]

@Carolrose I'm seeing a naturopath in Orange County who has no problem rx'ing antivirals (except probably Valcyte). I've been on famvir for about a year.

She's supportive of all the crazy stuff I try and we have a good partnership. She has no ego, just wants me to feel better. I think she is lacking When it comes to our sleep issues, fortunately my pcp is good with that.

Send me a PM and tell me where you are. I know of a few docs.

Hi, I am in Los Angeles area called Playa Vista north of Los Angeles International Airport. Rite now I am seeing Dr. Chia for my recent crash and burn episode. My medical group is thru Torrance Memorial. They are pretty amazing. BUT since moving to my current location and driving now becoming a major problem I need a group closer to my location. I tried using Uber a few times. Fabulous service actually. I can not continue to keep that cost going though. Too many doctor visits for that to be a solution for me. So, back to searching. Used to be with Cedars and Saint John's before that. Again, the drives will not work for me anymore. Thanks for any input you might have. Carol

 

[Who Me?]

There's a guy in LA. I can't think of his name right now. I have to hunt around. He's integrative I think, you'd have to do some research. He may be too far. My LA geography is not good.

I found my NP by googling my city and then all sorts of options: naturopath, integrative, functional medicine, methylation. I see her once a year the rest are Skype.

I get some rides through my insurance but I found a local group where I can buy taxi vouchers and they also have a coupon system to provide rides.

I would start hunting for organizations that may be able
To help. It's a long process but some places know of others and you might get lucky.

Let me look for that doc.

 

[Who Me?]

Ok this is the guy. How I found him so fast is beyond me. I don't know anything about him except he does peptide Injections. I know someone in Florida who got them and is much better.

I'm not saying to get the Injections but this guy might be ok. Do your research.

http://www.drgruenn.com/

 

[Carolrose]

Hi. This is an interesting site. Thank you for sharing. He actually is located not too far from me. I also see some interesting modalities I might be able to request more specifically from my attendees now.

 

[Who Me?]

Oh good. If I was closer I'd go see him I think. Worth a shot.

Keep me posted. I'll dig around for others in LA. I'm thinking there was someone else but I'm blank right now.

 

[Mandy]

I finally have an update!

I found a doc on the Eastside/Seattle area that will not only do antiviral testing, but has done them before! Hallefrickinlujah!
I just got the results of my full work up. No hormone/thyroid/insulin problems. No herpes virus problems. But I tested positive for mycoplasma, parvo, and off the charts for Epstein Barr virus. I also had a sleep study done which revealed I don't have sleep apnea, but I have some sort of heart issue going on.
I was prescribed Lister-V for now. And then will be able to look at antiviral treatments after we figure out what's going on with my heart.

I feel so relieved to have found a doc that listens to me! I might just put up a billboard for him!!

Here's a link to the clinic's website.
http://cornerstonehealthclinic.com

Thank you Minx, for the encouragement to find a great doc.