NIH Sends Top Central Nervous Infection Specialist To Speak at CDC ME/CFS Meeting

[Chris Pfeiffer]

Chris, I do not know what MMS is - please can you advise?
I'm trying to work on vagus nerve too but I'm using a bio-feedback & Stim machine for that.

MMS stands for (Medical Mineral Suplement or Medical Miracle Supplement) or CD (Chlorine Dioxide). It is a very controversial treatment that is being used in within alternative treatment groups. I view it as the poor man's ozone treatment. Since, buying the equipment from Ozone treatment is a several $1000 investment while MMS can be started for as little as $25. The controversy exists because CD (my preferred description is a form of bleach used in municipal water and other processes to kill pathogens). Basically, it is an oxidizing protocol like Hydrogen Peroxide or Ozone. Basically, CD has the chemical formula CLO2. The CLO2 breaks down in the body in presence of acid or chemical that have an affinity for Chlorine. For example , Sodium, to form NaCL (salt) and O2. The O2 then reacts with the pathogen and kills it through Oxygenation. Because CL has an affinity for certain chemicals that the body needs (soidum, potassium) as well as others that you want to get out (Heavy Metals), you need to take extra minerals with it. Also, because if you take too much or do not dilute it, you can kill yourself (which is true of almost everything). You, also, need to start slowly and work your way up, to prevent Herx reactions or possibly as described above overactive auto-immune reactions.

 

[Chris Pfeiffer]

MMS stands for (Medical Mineral Suplement or Medical Miracle Supplement) or CD (Chlorine Dioxide). It is a very controversial treatment that is being used in within alternative treatment groups. I view it as the poor man's ozone treatment. Since, buying the equipment from Ozone treatment is a several $1000 investment while MMS can be started for as little as $25. The controversy exists because CD (my preferred description is a form of bleach used in municipal water and other processes to kill pathogens). Basically, it is an oxidizing protocol like Hydrogen Peroxide or Ozone. Basically, CD has the chemical formula CLO2. The CLO2 breaks down in the body in presence of acid or chemical that have an affinity for Chlorine. For example , Sodium, to form NaCL (salt) and O2. The O2 then reacts with the pathogen and kills it through Oxygenation. Because CL has an affinity for certain chemicals that the body needs (soidum, potassium) as well as others that you want to get out (Heavy Metals), you need to take extra minerals with it. Also, because if you take too much or do not dilute it, you can kill yourself (which is true of almost everything). You, also, need to start slowly and work your way up, to prevent Herx reactions or possibly as described above overactive auto-immune reactions.

Can you send me information on what you are doing for vagus nerve stimulation.

Thanks

 

[Cort]

Cort - do you know anyone who has CFS and has benefited from Ozone or MMS/CD? I keep listening to these different summits and researching, so I am examining everything: mold, heavy metals, vagus nerve, infections. I never know when people have been help who claim to have CFS whether it is CFS or something else. Also, I call this my 6th round of CFS with every version being different and worse than the one before. so even for me, it's hard to say. Different things have worked in the past, but now like Atna, everything beats me up. Also, I always question what is herx reaction. People say, its from toxins being released in you system from things you are killing. However, with my new found reaction to anti-biotics, it makes me wonder if everything is an overreaction at this point in my CFS. Also, something I also learned recently that might be worth trying from the gut summit. Vigorous gargiling 3x a day to the point that you have tears is supposed to stimulate the Vagus nerve. The problem is I have no energy at all, that even that seem daunting.

I don't know plus or minus or either actually. Maybe someone else does.

 

[Atna]

Can you send me information on what you are doing for vagus nerve stimulation.

Thanks

Thanks for the info, Chris.
I'm using a device called Avazzia (may I add I have no affiliations with it or any other company), as prescribed by my physical therapist. Check out their website. It really helps with my pain and I use it where my neck shoulder meet to stimulate the vagus nerve & then on the lowest possible setting on assess & relax right behind my ears. Nothing too intense or crazy - just gently. Because we have to tread gently....

 

[Sarah R.]

He would be the guy to confirm it. Evidence of CNS infection has already been found in several ME autopsies.

I'm wondering who is doing ME or CFS autopsies. I would sure like to have one done on my CNS when I die, but I'm unsure how I could apply to be studied in this way. Does anyone know who is doing this and how one might become a candidate brain to be studied?

Thanks for this good news, Cort!

 

[weyland]

I'm wondering who is doing ME or CFS autopsies. I would sure like to have one done on my CNS when I die, but I'm unsure how I could apply to be studied in this way. Does anyone know who is doing this and how one might become a candidate brain to be studied?

Depends on what country you are in. If in the UK, you should contact the ME Association, they have been doing work on a biobank. In the US, the Solve ME/CFS Initiative has a biobank as well. I believe they are mostly geared for fluid samples, but if you contact them I'm sure they will tell you if they take tissue samples or not.

 

[Sarah R.]

Thanks, Weyland. I'll contact the Solve ME/CFS Initiative and see if they're collecting brains .

 

[Sarah R.]

Thanks for the info, Chris.
I'm using a device called Avazzia (may I add I have no affiliations with it or any other company), as prescribed by my physical therapist. Check out their website. It really helps with my pain and I use it where my neck shoulder meet to stimulate the vagus nerve & then on the lowest possible setting on assess & relax right behind my ears. Nothing too intense or crazy - just gently. Because we have to tread gently....

Cort, hi, I just went to the Avazzia site, and they have a bunch of different devices. Could you tell us which of their devices you've been using? Thanks.

 

[Chris Pfeiffer]

This is interesting indeed, as I too find that whatever form of treatment I seem to start, within a short while I'm so ill and in such pain that I'm forced to quit 'Atna' and any others, may I ask what treatment you have tried and had to stop due to flaring. I am now on LDN (only for 3 weeks and slowly building dose up) but I'm feeling worse as I go. Anyone had this with LDN? I've tried MMS, managed 2 weeks and was back to being a spoon fed bedridden case. Same with 'Allicin', managed a week of that and oh my goodness I felt ill. I've done the Cowden protocol and managed 2 months on full dose, but then had to stop as I was in desperate straits again. I seem to react poorly to everything I take and I was beginning to think this may actually be due to the fact that my 23andMe results which I've recently received tell me I'm 'Homozygous for MTHFR C677T , COMT V158M, COMT H62H, VDR Bsm' and this I now learn means Blocked Methylation Pathways (a reason why some have serious trouble tolerating medication and treatment). But now after reading this article, the possibility that antiretroviral treatment actually triggers CNS-IRIS because it pushes an already off-balanced immune system more off-balance makes sense.

Here is some information on LDN that might be useful. With all of these thing go low and slow

https://sites.google.com/site/dudleyslowdosenaltrexonesites/home/when-ldn-is-not-working

 

[Jiki Bertsch-Betts]

I'm glad it helped. That's actually my general experience - that my worst times come after my best times. The only thing I know is to proceed very slowly so my system can try to adjust. I actually think that meditative /mindfulness practices help slow down or perhaps rebalance the immune system and that helps too. That said the same thing happened to me with meditation about 15 years ago - my energy zoomed and then I fell apart again.

Nowadays my energy doesn't zoom so much and I don't fall apart so much. I think it could be just getting older. I heard that our immune systems slow down a bit.

Cort, I too find myself thinking back to those early years, starting in 2007, when I was down for about three weeks, but then so happy and relieved when I would wake up and feel normal. Now, I don't feel as bad, but don't feel as good either. As Atna related, I felt like I was going out of my mind a couple of weeks ago, on a downturn. Am going to try Wellbutrin, in hopes of increasing my dopamine levels, assuming that is part of the problem. Best regards, Jiki

 

[Cort]

Cort, I too find myself thinking back to those early years, starting in 2007, when I was down for about three weeks, but then so happy and relieved when I would wake up and feel normal. Now, I don't feel as bad, but don't feel as good either. As Atna related, I felt like I was going out of my mind a couple of weeks ago, on a downturn. Am going to try Wellbutrin, in hopes of increasing my dopamine levels, assuming that is part of the problem. Best regards, Jiki

Good luck Jiki!