Drug What Meds Are You Currently on for CFS/ME, FM and Comorbidities?

[Sam Hall]

I like KPAX! I don't how long I'm going to take it. I've always have bad reactions eventually to things that help, but it's the strongest supplement I've ever taken. Kaiser did say that KPAX is going to add ubiquinol I think it is and maybe something else to the formula over the next couple of months I think it was.

What KPAX formula are you taking?
I am a patient of Dr. Chia and i have taken, for a year, a generic form of Epivir, an antiviral used by HIV patients along with Equilibrant. It has made a moderate difference. After 2 months of starting the treatment I felt great which lasted for 6 months. The effectiveness seem to wane for the next 2 months. Recently I have begun to feel a little better but nothing like I felt in beginning.

 

[TigerLilea]

@TigerLilea what really helped me with sleep, if that is what you are talking about, is layering about 4 different things each night to start. I have more I take when I wake usually around 3 a.m.

Sleep initiator, sleep sustainers, and some other stuff. I switch off between about 10 plus things every night. The only thing I take every night is trazodone and thats more psychological than necessity.

Example. Halcion, seroquel, trazodone and OTC antihistamine. Ambien, doxylamine, zanaflex, passion flower.

I'm one of the lucky ones who sleeps pretty well most nights. I think that is due to trying to keep as physically active as possible with CFS. The only time I was having problems with my sleep was when my doctor had me on total rest and taking afternoon naps because she thought it would help my CFS. It didn't!

 

[Who Me?]

so you just meant supplements in general never helped you? That's why I was confused.

 

[TigerLilea]

so you just meant supplements in general never helped you? That's why I was confused.

Exactly! I've never found a supplement that has helped in any way with my CFS symptoms.

 

[Who Me?]

I think @Strike me lucky was right when he said we may not feel them doing anything major but they could be doing stuff in the background that we are unaware of.

 

[belle]

I don't take any medications either - be interested to know how common this is but I think you've run out of boxes?

 

[Folk]

I don't take any medications either - be interested to know how common this is but I think you've run out of boxes?

Yes I did

But I bet that's not that unusual, for the first 8 years I didn't take anything (I had only pain back then).

The drugs aproved for FMS are few and aren't the best and for ME/CFS there's no drug aproved so... you make the math :\

I would recommend though, that you try to find a speciallist and try something to improve your condition (which I don't know how it is hehe)

 

[belle]

Thanks for your concern Folk. I live in the UK and would have to travel a very long way to find an ME specialist and to be honest, given my current symptoms, I don't think the outcome would be worth the cost to my health. I rather think I'm better off being my own health care provider until there is some sort of breakthrough, or my health situation changes.

I've been ill for 6 years 4 months; I'm pretty much housebound and mainly moderate, with occasional lapses into severe, in terms of day to day debility.
Luckily I don't have the severe pain and gastric problems suffered by so many people; PEM, head pain, OI and problems with information processing continue to be my chief symptoms thus far.

I've spent a lot of time monitoring and adapting to reduce my symptoms; sadly the less I do the better I feel. Now I just need a cure for the boredom that is inclined to accompany effective resting; I think of it as 'Infirmity versus Insanity!' and some days it's hard to know which is more difficult to bear!

 

[repose]

Hi.

I want to flag up " Pro Health`s " B-12 extreme .
At last something that helps!